Newby....My baby boy needs surgery.

[siobby]

Thank you. He needs to have surgery, will be happening this wednesday, if not then the wednesday after. He has classic erb's palsy and they are anticipating there is significant damage to his C5. I guess they will know more when they get in there. Best prediction is they will just be releasing the scar tissue to the C5 nevre and the op will only be about an hour long. As always I am hopeful of a spontaneous recovery before then.......you never know!!

[katep]

That's great to hear (on the other thread) that he has good tricep. The prognosis is much better when C7 is un/less involved.

Kate

[greenfamily05]

How is your son doing now? I know it must be hard on you. I am new to the forum and just read your comments.

[siobby]

He is doing very well thank you. He has been sleeping like a newborn since his op and seems to have dreadful wind probably due to the drugs they plyed him with, other than that and his bandages you would never know what trauma he has been through in his short life, he is such a happy little chappy. We get the bandages off on friday, which we are looking forward to since we have had to change them frequently due to pootastrophy's and his ability to kick them off. And of course we are anxiously looking forward to see what results he might get from the surgery.

[ruralwaters]

to the posts in this thread~ i am in tears, readin the stuff in this thread its like readin my life ... my son is gonna have a consult/baseline eval w/ a surgeon this week, he is four months old and a big guy at birth 9.3lbs, it's like no one (medical ppl) tell you much, i just found this site tonite, everyone acts as tho Erbs palsy or related med issues are no biggy, and i almost was under that gross misnomer! this is crazy, his left arm moves a ton, but recently according to neurologist he is decreasing, so off to the surgeon for consult ...eeekkkk! my 3yr old is a gem and takin all the trips w/ "brother" to doctors in stride, she and he are my world but im startin to realize the seriousness of all this and im readin this thread n thinkin omg this is my life, just sayn it brings me an odd sense of comfort to kno their r families out there facin this, even tho bpi's shud nvr happen! they r preventable. i just hate this for my beautiful son. he is perfect to me but as a mama i am already pensively awake wrryn for him, and his loving sissy makes it so helpful too, she has zero clue brother is in pain. im kinda curious bout losta things: but truth is im tired and gonna retire... third half hour physical therapy visit tmrw n then bracial plexus clinic this week...idk where i am even goin w/this thread just felt tears of pain, relief, comfort and realization of weight of matter, everyones stories are telling me about a world i never knew existed, that now im havin to learn bout on my own. thanks for your stories and support of eachother, i am so grateful i found this site...can tell it will be a place for me to come and gain perspective, support and new understanding..hope to have great news to rpt soon :] ty for listn

[siobby]

Hi,

It pains me to hear of yet another baby born with an injury that could so easily be prevented. I know what you are going through, Jacob was 4 months when the "gravity" of the situation really hit me, I had a hard time for a little while with the torment of would he/would he not need surgery, and then dealing with the surgery itself. I am back on track now trying to be positive and strong for both my babies. In hindsight I can see all my worry was possibly a little unnecessary, Jacob is doing great. Although I'm not telling you not to worry, after all, we are mother's and we worry about all our kids regardless.

Please let us know how you go, it is important to share our stories.

And remember to take care of yourself, our babies will be brilliant with or without this injury and we love them just the same

Siobhan