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Re: Coping with Palsy as a teen
Posted: Sat Feb 19, 2011 2:44 pm
by Carolyn J
Oreo's & Mountainn dew and Jennifer,
It took 66 years for me to find something to excel in AND FIND UBPN...
Hugs,
Carolyn J
LOBPI/72++
Re: Coping with Palsy as a teen
Posted: Sat Feb 19, 2011 2:59 pm
by Jennifer P
and that's totally alright!
Re: Coping with Palsy as a teen
Posted: Tue Mar 01, 2011 7:02 pm
by Becka
Hi, my name is Becka and I'm new. I'm 13 right now and I would enjoy talking to anyone cause, I'm a little lonely. Any way ill be on latter and hope I can get to know any one real soon.
Re: Coping with Palsy as a teen
Posted: Tue Mar 01, 2011 9:47 pm
by sophielove13
I know that its hard trust me i have had it since birth i am 14 right now and i feel the same as you like little simple things the world takes advange of is just so hard for me. I can relate to the pain just writing will have my arm hurt like heck. But you know what i think sometimes is that even though we have it hard other people have it worse. That probly didnt help much, but if you ever need someone to talk to i am here <3
Re: Coping with Palsy as a teen
Posted: Tue Mar 01, 2011 10:35 pm
by Becka
Thanks, I say the hardest part is going through the hard and painful exercises that you have to do. I never did the exercises after age 9 they were just to hard to do when you have BPI
Re: Coping with Palsy as a teen
Posted: Wed Mar 02, 2011 11:58 pm
by karategirl1kyu
getting through the awkward teenage years is a little more difficult with a bpi, but we adults are here to let you know that we all got through it
...you can do it too. i know that the exercises hurt, but it for your own good to continue doing them. you may not think well of it now, but i only wish i continued to do them... i lost so much function quitting the exercises... people may point and laugh or stare... or even say mean things... but you have to either educate them or ignore them... dont let them get to you. we are stronger becasue of our injuries, im pretty sure we even have a higher tolerance for pain. i hope that i helped a little, im around...
Re: Coping with Palsy as a teen
Posted: Thu Mar 03, 2011 6:07 pm
by Becka
Yep that's what i always do. just ignoring them is the best way for me. and since i didn't continue the exercises my left arm is really shorter than the other. maybe about an inch.
Re: Coping with Palsy as a teen
Posted: Fri Mar 04, 2011 2:12 pm
by karategirl1kyu
mine is shorter too
you are not alone!! i think it has something to do with the nerve damage... i know a few other adults with shorter arms too!
Re: Coping with Palsy as a teen
Posted: Fri Mar 04, 2011 2:17 pm
by Jennifer P
mine's shorter too. and skinnier, i hate wearing long sleeves.
Re: Coping with Palsy as a teen
Posted: Fri Mar 04, 2011 5:48 pm
by Carolyn J
Every adult "OBPI-er" that I've met and read posts here , their...OUR... BPI arm is sorter than the "good" one.
Hang in here!!
Carolyn J
LOBPI/72++