William, french 1 month old baby

Forum for parents of injured who are seeking information from other parents or people living with the injury. All welcome
katep
Posts: 1240
Joined: Mon Mar 29, 2004 3:20 pm

Re: William, french 1 month old baby

Post by katep »

Pierre,

I'm sorry, I couldn't find many. The one I posted, and the other I forgot the link. Here it is:

"Obstetric Brachial Plexus Injuries Following Breech Delivery: An Adverse Experience in The Netherlands"
http://www.ncbi.nlm.nih.gov/pmc/article ... s18301.pdf
This one has a lot of details about which nerves were used for transfer, with a decent success rate.

It seems there are not many articles that discuss neurotization (nerve transfer) in the context of intact lower roots but avulsed upper roots (breech deliveries). I'm sure because it is so very uncommon. The typical surgery is addressing nerve transfer for lower root avulsion, so the lower roots are neurotized to the upper plexus typically. But it seems that upper plexus avulsions are more often connected to nerves outside the plexus. That is the basis for my gut feeling of wanting a surgeon who has seen the highest possible number of OBPI patients. This type of injury demands a very different approach, and even the most prolific surgeon wouldn't see many cases over an entire career.

Kate
pmali
Posts: 6
Joined: Tue Dec 28, 2010 6:51 pm
Injury Description, Date, extent, surgical intervention etc: William, 1 month old, right arm paralysis (C5-C6)

Re: William, french 1 month old baby

Post by pmali »

you're right.
thanks for the articl! I found also different other ones:

Clinical and neuropathological study about the neurotization of the suprascapular nerve in obstetric brachial plexus lesions

Dominique Schaakxs1 email, Jörg Bahm2 email, Bernd Sellhaus1 email and Joachim Weis1 email

1 Institute for Neuropathology, Klinikum RWTH Aachen, Germany

2 Euregio Reconstructive Microsurgery Unit, Franziskushospital Aachen, Germany

Oberlin's ulnar nerve transfer to the biceps nerve in Erb's birth palsy.
Plast Reconstr Surg. 2002 Jan;109(1):405-7.

Oberlin partial ulnar nerve transfer for restoration in obstetric brachial plexus palsy of a newborn: case report
Koji Shigematsu email, Hiroshi Yajima email, Yasunori Kobata email, Kenji Kawamura email, Naoki Maegawa email and Yoshinori Takakura email
Department of Orthopaedic Surgery, Nara Medical University, Nara, Japan

Some results are quite very good!

THe journal of brachial plexus and peripheral nerve injury is very dense of detailed articles.

Thanks again and happy new year!!
pmali
Posts: 6
Joined: Tue Dec 28, 2010 6:51 pm
Injury Description, Date, extent, surgical intervention etc: William, 1 month old, right arm paralysis (C5-C6)

Re: William, french 1 month old baby

Post by pmali »

Dear all

we just came back from Paris where we had good news (Hospital Trousseau, Dr Romana)

Benjamin is recovering his deltoid muscle (grade 3) and also a little bit his biceps (grade 1)

It was very good news since my fear was C5-C6 avulsion (which can be excluded now)

We have to wait for one more month to see if he'll be able to bend his elbow up to his mouth.

Otherwise probably there will be a classical surgery (C5-C6 nerve grafts) with a good prognosis.

Thanks again!
katep
Posts: 1240
Joined: Mon Mar 29, 2004 3:20 pm

Re: William, french 1 month old baby

Post by katep »

I am so glad to hear this news! Thanks for updating us. I'm glad his prognosis is improving... there's still room to improve even more :) You are in our prayers.

Kate
Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
Contact:

Re: William, french 1 month old baby

Post by Carolyn J »

Benjamin and you,Mom & Dad, are all in my Prayers.
Thank You for your update.
Carolyn J
LOBPI/72
Locked