United Brachial Plexus Network, Inc.

Tiffany,

I just read your post that your daughter will be having a LOWER trap transfer, rather than an upper trap transfer. I wanted to set your mind at ease: the lower trap transfer is a much, much less painful procedure!!! The recovery is more intuitive and quicker than the upper trap transfer! YAY for your little girl! I really wish this surgery had been an option for Aria.

I have read a lot of studies where children (and adults) have had amazing results from the lower trap transfer (and none where their winging was increased)!

I'm excited about the possibilities this surgery could open for your little girl! Please keep us posted on her progress!!!

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mica

Kate, thank you so much for those websites. They are pretty awesome and I found them very useful.

Mica, I appreciate the offer of talking over the phone. I messaged my info over to you the other day.

Carolyn, Thank you for your kind words. Mica is right, we do have to stick together and support each other. That helps us to provide the best care for all of our children.

TIffany,

Our daughter had the upper trap transfer, so it is the only trapezius surgery I personally have experience with. However, if you'd still like to talk regarding our experiences with Dr. Kozin, or just what it's like to go through a surgery with your child, I would be more than happy to chat with you. Just let me know.

Either way, we'll be praying for your family!!!

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m

Thanks Mica! Somehow I missed your previous message about the lower trap transfer. Reading you post does make me feel sooooooo much better as I am so nervous right now. I appreciate you and everyone that has posted to this website. Because of people like you, it makes our decisions a little easier and better informed... And every little bit counts!! I will keep you updated on Amaya's progress.