United Brachial Plexus Network, Inc.

im kinda a tattoo veteran at this point.. i have six, one of which i did myself, but thats besides the point. i want to get a memorial tattoo.. and thats the only spot where it will fit! lol!

and the other thing, i dont think any of us are alone in this because we have all found each other here!! im hoping i can come to camp next year!!

Mel

You're definitely right about not being alone. I'm soooooooo glad I found this site it's great. I've never been to any of the camps but I'm hoping to go next year too

Sarah
I have spots on my robpi where I can't feel heat! Because I can't turn my arm palm up, I use to test my babies bottle temperature with my robpi forearm. Several times the babies would cry,so I tasted it. It was so hot but still I did not get it that I could not feel heat. When I tested the water in my shower, I would put my right arm in...duh...burned my self when I stepped into the shower because hot does not feel hot on robpi side. If was when I got older that I realized that I don't feel heat the same way on my right side as I do on my unaffected side. My arm has some numb spots and some super...super...super sensitive spots. If I touch my shoulder in one spot... I feel a zing in the palm of my hand. It's crazy but that is the way the nerves healed.

Kath robpi/adult


Message was edited by: Kath