It's never too late

This board is for adults and teens to discuss issues relating to BPI since birth (OBPI).
Chrissie
Posts: 38
Joined: Sat May 16, 2009 11:57 am

Re: It's never too late

Post by Chrissie »

Yes, it's never too late. I saw the neurologist recently and he has referred me for some physio. I have only ever had one session of physio in 55 years so I feel that -inspired by members of the board - I will now receive some medical help.
Judy-T
Posts: 557
Joined: Fri Nov 02, 2001 11:59 am
Injury Description, Date, extent, surgical intervention etc: Right arm OBPI One surgery at age 40 Ulnar nerve retransposition
Location: Florida

Re: It's never too late

Post by Judy-T »

I am happy that you are receiving medical help.I hope that it will relieve some of things you are going thru. Keep us informed.
Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
Contact:

Re: It's never too late

Post by Carolyn J »

Im so glad you're recieving therapy, Chrissie. all of us adults NEED it,but Dr's don't seem to listen!!! :(
HUGS,
Carolyn J
Carolyn J
Adult LOBPI
Master DIVER TOM
Posts: 759
Joined: Tue May 05, 2009 11:51 am

Re: It's never too late

Post by Master DIVER TOM »

Here is somethings I found that help me with the tension issue with the erbs. First I like to support my erbs arm by using the arms on a sofa or chair. This helps the pulling felling in my shoulder. I sleep with a small pillow in my arm pit. It changes the angle of my erbs arm less tension on the arm. I found using ice packs help to. I found streaching my shoulder blades together helps to. I found getting a better balance Some was done by getting shoes that are called new balance. My biggest relief for tenstion comes in a pool by just floating on my back or from the weight ness from scuba diving. You guys know now that I drove a semi for years. I unloaded thousands of pounds of frieght with my erbs arm to. I balance the freight with my erbs arm and rasied it with good arm. I did this for 20 yrs . I guess these tips may help for pain and tension issues??

TOM
whenimsixty4

Re: It's never too late

Post by whenimsixty4 »

Its so inspiring to hear from others who deal with the same frustrations. I've never met anyone else with this injury and I've always felt rather isolated because of it.

I've been reading thru the boards and find I can identify with many of the complaints I see here: sciatica, limited range of motion, cramps, twitches, finding comfortable sleeping positions... I also suffer severe headaches from the tension in my neck and shoulders. One thing I find curious is that my upper arm (my left is the injured side) is hypersensitive, where most of what I've read refers to lack of feeling due to nerve damage. I've always experience heightened sensitivity in my left arm- anyone else have the same problem?

Oh, my name is Alisha, btw, I'm 28 and I live in Texas. So nice to find some friendly people to share with!
Judy-T
Posts: 557
Joined: Fri Nov 02, 2001 11:59 am
Injury Description, Date, extent, surgical intervention etc: Right arm OBPI One surgery at age 40 Ulnar nerve retransposition
Location: Florida

Re: It's never too late

Post by Judy-T »

Welcome to the board Alisha. You just described my injured arm to a T. I cannot stand anyone bumping or touching me in certain spots. I feel like I am being attacked and want to defend myself. Glad that you found us.
Judy 48 ROBPI
klow
Posts: 3
Joined: Wed Aug 05, 2009 1:07 pm

Re: It's never too late

Post by klow »

Hi, I agree, I've never met anyone with this either and always felt alone in it.I never related my sciatica pain to this until you mentioned it. I am 43 and am finally trying to get some answers from my doctor about the increasing pain, even in my unaffected arm. He always seems to treat it like it's an ingrown toenail or something insignificant. He is finally sending me to a specialist but I've been waiting for an appointment for 4 months now. Working is getting almost too painful to bear now so I don't know what I'll do in the future. Keep playing the lottery, I guess! Some parts of my arm and hand a hypersensitive and other parts are numb.
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