i just wanted to say hello

This board is for adults and teens to discuss issues relating to BPI since birth (OBPI).
Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
Contact:

Re: i just wanted to say hello

Post by Carolyn J »

WELCOME DAVID!! to our UBPN Family. There is alot of Caring-Support, information, and sharing our experiences here on all Message Forums-- and everyone is welcome on all Forums. There is no such thing as a dumb question anywhere on UBPN.

Come back often, I love learning from everybody's posts!

Carolyn J
LOBPI/70--sometimes adult ;)
Carolyn J
Adult LOBPI
User avatar
Charlie O
Posts: 18
Joined: Sun Aug 10, 2008 9:52 am
Injury Description, Date, extent, surgical intervention etc: ROBPI resulting from a birth injury. Limited motion at the shoulder, elbow, and wrist. No pain or surgeries.
Location: Philly
Contact:

Re: i just wanted to say hello

Post by Charlie O »

David,
Welcome. Your story sounds very much like mine. I've been living with ROBPI for 46 years and used to be very self-conscious about it. Any questions, feel free to ask.
-Charlie
If daydreaming were criminalized, I’d be a lifer.
Antoinette422
Posts: 3
Joined: Sat Nov 15, 2008 8:22 pm

Re: i just wanted to say hello

Post by Antoinette422 »

Hello, I am new to this site and I am 61!!! Even tho I was lucky, my parents got me the help I needed earlier on, This site has changed my way of thinking down on myself! I had no idea so many were affected by this? Thank you all for sharing your stories. I feel better already. I was a successful teacher in the town I grew up in, I have a wonderful understanding husband, and 3 great kids! I just wanted to share my story. :}
Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

Re: i just wanted to say hello

Post by Kath »

Hi Antoinette

I was just 60 when I found this site and was shocked that so many babies were injured. When I first found UBPN there were only 5 adult/obpi posting. Over the last 9 years I have been fortunate enough to get to know so many other adult/obpi's and share our thoughts, humor and frustrations when it come to life with bpi.

I also have a great husband 3 children and 5 grandchildren. My parents started care for me in NY Hospital at the age of 2 weeks. Some of the therapy I see the kids using today is the same therapy my parents used for me. Welcome to the Message Boards.

Kath Robpi/adult
Kath robpi/adult

Kathleen Mallozzi
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