Re: Sad mom, with 5 month old with bpi!!!!
Posted: Tue May 28, 2002 12:32 pm
I would really like to thank all the parents who have responded to my post, all your answers have been helpful, good luck to the family who will be going to TCH in July for surgery my thoughts and prayers are with you always. I did not realize how many babies and children are affected with this disability. If anyone would like to stay in touch with me that would be great because here in my little town in Ottawa, Kansas there are no children that I know of that have BPI or any support groups as well, you can e-mail me if you'd like. Our daughter Lesley Jane has only seen her Pediatrician and one Specialist named Dr. Renaldi from Children's Mercy Hospital in Kansas City, we were seeing a therapist from Lawrence once a week but had to stop because it was weighing on us financially, we just could not afford to drive up there once a week, I have tried to find out if there is any type of program where our daughter would still be able to see her therapist, as well as trying to get financial help to get us up and back, but to no avail, have I been able to find anyone to help us, I do all excerises that the therapist has taught me, with every diaper change, when she lays on her back she can lift her arm a short distance of the ground, but not for very long, when I get her dressed she sometimes cries like it hurts for me to get her dressed, I do bad arm in first and good arm in last and reversed when I get her undressed. If anyone can give me some more opinions on what I should do next or where I might be able to get some help financially or just some help, I would greatly appreciate it. Well thanks again for listening to me blap on, I guess that is what this site is for, to vent and get answers and understanding. Lesleys' Mom
Danielle
Danielle