United Brachial Plexus Network, Inc.

I think this is a great idea! Let me know if we are doing anything. If you could email me that would be great. I am pretty busy right now. littleones26@yahoo.com

Tracey

Ryan I would be happy to help figure this out and help set it up. My orginal idea was to have a seperate place as you said as I think when people set up profile info they are nervous to list very much. Maybe we could survey whether profiles or a seperate list would be more what people want. Let me know how I can help.

it's something we discussed in Awareness Committee to make information more available to others visiting....

meaning that the adults wanted to share more information about what they did for pain relief and therapy and surgeries and such and this is the type of information that UBPN can't put in a document but people could share it in their profiles.

Hope it's available with the new software!

-francine

This is Debbie. Could you let me know how your daughter is doing, and why they haven't done surgery.
My son is 6, and we are going to children's to have him checked out. ( We just learned of this, so we are so excited.)Our email is debndave@taylorelectric.org.
Thanks.
Debbie

My last reply was to CW1992. This is confusing. It looks like I am replying to the person above me. Oh well, I'll get use to it.