Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey". There is NO SUCH THING AS A DUMB QUESTION. Sharing helps to Heal. HUGS do too.
Heather,
Yeah, somethings you read and se may make you cry(crying is good sometimes too) BUT did you happen to see the pictures posted in "UBPN Camp" Forum from 2007?...and see all of the happy smiling kids and adults "with"??
We have f-u-n!! Please plan to come to Camp 2009. Keep watch this web site for information.
Rich,
Thanks alot for the Update information re K. Kennedy's eforts to get our Injuries counted in Iowa. I am working on this for our WA State but things are slooow here. Thanks too, for the Links.
welcome Heather!
I actually can bend my arm up, but my elbow is locked so i can't bend it down. it's real great for lifting things i must say! My mother called it "erb's palsy" my whole life. it wasn't until in my recent years i started really researching it and found out more terms and info on the subject. personally, i haven't had surgery and stopped OT when i was 8 and I've learned to function pretty normally(though aesthetically it looks pretty out of place and i understand your want of surgery). I hope you figure out what you yourself need!
Beth 21, right OBPI
