I am glad to see adult/obpi being honest on this thread. That is why this question is posed here on the adult/obpi Message Board. I also feel we need more for OBPI/adults at camp. There are many issues, that most (not all) OBPI adults have never had and opportunity to address in a "safe" place.
Your responses will help in the planning of the next camp. This is the only place we can express our feelings with others who understand.
This message board was created so that we can share our feelings and needs as adult/obpi.
Thanks for all the open and honest responses.
Those who are just reading and have feelings regarding camp please tell us what would attract you to camp.
What do you feel you need to have a rewarding Camp experience?
What would encourage you to attend camp?
Kath adult/robp
UBPN BOD Member
Adult OBPI & Camp ?
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Kath
- Posts: 3242
- Joined: Mon Nov 18, 2002 4:11 pm
- Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
- Location: New York
Re: Adult OBPI & Camp ?
Kath robpi/adult
Kathleen Mallozzi
Kathleen Mallozzi
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: Adult OBPI & Camp ?
BUMPING UP for Kath....poor dear,she's going to be another year older very soon and is forgetful sometimes...LOL
Come on! let all of us adults do a Wish List of what will make us want to go to Camp 2009 in Florida. You all know we adults need to be with each other!!
HUGS all around,
Carolyn J
Come on! let all of us adults do a Wish List of what will make us want to go to Camp 2009 in Florida. You all know we adults need to be with each other!!
HUGS all around,
Carolyn J
Carolyn J
Adult LOBPI
Adult LOBPI
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karategirl1kyu
- Posts: 363
- Joined: Mon Feb 19, 2007 12:59 am
- Injury Description, Date, extent, surgical intervention etc: LOBPI, had surgery when I was 9- they moved muscles and tendons from one side of my arm to the other side. I can lift my arm to about my eye level, can't straigten it all the way and can't completely supinate my wrist.
- Location: Richmond, RI
Re: Adult OBPI & Camp ?
I'd love to finally go to one of the camps.. it sounds so cool, and the only thing is- i graduate college in the spring.. and i'll be starting a professional carrer- how do you guys get the days off that you need to go to camp??
Mel, 20, LOBPI, RI
Mel, 20, LOBPI, RI
~Mel/23/LOBPI
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marieke
- Posts: 1627
- Joined: Fri Apr 01, 2005 6:00 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008. - Location: Montreal, Qc, Canada
- Contact:
Re: Adult OBPI & Camp ?
Up until now, they were held during Labour Day weekend,so most people get the long weekend off anyway. For Florida it will be different as that is hurricane season, so it will be held on a different weekend...
I guess it all depends if you can ask for an extra day off or 2...! It's well worth it, and as the next one is only in 2009,plenty of time to figure it all out.
Marieke (32,LOBPI)
Hope to see you there!
I guess it all depends if you can ask for an extra day off or 2...! It's well worth it, and as the next one is only in 2009,plenty of time to figure it all out.
Marieke (32,LOBPI)
Hope to see you there!
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rachelcasa
- Posts: 729
- Joined: Mon Apr 21, 2003 11:45 pm
Re: Adult OBPI & Camp ?
Carolyn,
Don't worry about me at all. I'm sure I could manage to find one day to myself. I would enjoy an adults only day. I do work with kids all day so it's hard for me not to enjoy them as well.
Kayla says hi by the way to everyone!! She was just asking if we were going to get to go to Florida.
I've never been there and what fun it would be to go and see all my friends at UBPN.
Don't worry about me at all. I'm sure I could manage to find one day to myself. I would enjoy an adults only day. I do work with kids all day so it's hard for me not to enjoy them as well.
Kayla says hi by the way to everyone!! She was just asking if we were going to get to go to Florida.
I've never been there and what fun it would be to go and see all my friends at UBPN.
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: Adult OBPI & Camp ?
BUMPING UP because after reading the post this morning "where's Chris?" it sounds like I missed out big time on the "AdultBPI Water Volley Ball" Game at Camp this year.[must've gone to bed early!!..LOL]
Next Camp let's schedule a game at the pool so all adults can make it. Wonderful therapy and fun too. Schedule another for Teens/tweens. [good bonding activity from 1 Camp to another].
HUGS,
Carolyn J
Next Camp let's schedule a game at the pool so all adults can make it. Wonderful therapy and fun too. Schedule another for Teens/tweens. [good bonding activity from 1 Camp to another].
HUGS,
Carolyn J
Carolyn J
Adult LOBPI
Adult LOBPI
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Kath
- Posts: 3242
- Joined: Mon Nov 18, 2002 4:11 pm
- Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
- Location: New York
Re: Adult OBPI & Camp ?
Carolyn
I'll come and keep score! LOL...
I had my days of Marco Polo and water Polo... LOL
I'd like to see a game of robpi vs lobpi or perhaps boys against the girls... LOL.
I'll get my pad and pencil ready along with my camera.
If you decide not to jump in an play you can be the cheerleader... LOL...
Kath robpi/adult
I'll come and keep score! LOL...
I had my days of Marco Polo and water Polo... LOL
I'd like to see a game of robpi vs lobpi or perhaps boys against the girls... LOL.
I'll get my pad and pencil ready along with my camera.
If you decide not to jump in an play you can be the cheerleader... LOL...
Kath robpi/adult
Kath robpi/adult
Kathleen Mallozzi
Kathleen Mallozzi
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hope16_05
- Posts: 1670
- Joined: Tue Jul 01, 2003 11:33 am
- Injury Description, Date, extent, surgical intervention etc: 28 years old with a right obstetrical brachial plexus injury. 5 surgeries to date with pretty decent results. Last surgery resolved years of pain in my right arm however, I am beginning my journey with overuse in my left arm
- Location: Minnesota
- Contact:
Re: Adult OBPI & Camp ?
lol I dont think our game even started until after 10 pm. It was so much fun though! Not like I needed sleep at camp, staying up till like 2 am then getting back up at 6 that caught up with me quickly when I got back to school. I would be fun to play again, I am up for it!
Hugs,
Amy 20 years old ROBPI from MN
Hugs,
Amy 20 years old ROBPI from MN
Amy 28 years old ROBPI from MN