United Brachial Plexus Network, Inc.

I am working on MISSOURI.

WHY, when I take my child to the hospital for Croup, or an Ear Infection- when I leave they give me a printed sheet about their respective diagnosis. BUT- the same hospital, did not give me ANY INFO WHATSOEVER, about BPI when it happened to my daughter? She was there for 6 days, and NO ONE told me what was wrong with her. I really believed that she just had a pulled muscle or something.

AS PARENTS, WE HAVE A RIGHT TO KNOW WHAT IS WRONG WITH OUR CHILDREN!!! The hospital should be REQUIRED to give parents a handout (written) about BPI when their child is diagnosed- before the child is released from the hospital! How can we make this a law?

I am sick over the fact that most of us are sent home with an injured newborn and a lie. This travisty should not happen to anyone else. Olivia was a month old before anyone told me what was wrong- and that person was a PT. Even her pediatrician (who referred me to the PT) would not tell me what was wrong with my baby! GRRRR.

Didnt mean to vent just now- sorry about that. Iowa has made a great first step- but it needs to go much further- on a national level. Any ideas on how to go about getting some legislation about this?

Veronica
Mom of Olivia, 3, Bi-OBPI

I looked up on the internet all the people in the California legislature and all the Senetors and thier email addresses. I am going to email everyone of them until I get sombody's attention. I also looked up the U.S. Health & Human Services Secretary who wrote a letter to this website and requested his email address and I will be looking up his Mailing address here soon to send him a request for a law. Is there anything else I should do??? We should all band together somehow. Maybe set a date that everybody in their own state call their senator or something. I'm not sure really how to do it though.
Breonna
Joseph's mother, 8 m, LOBPI