Pillow splint/not the statue of liberty
Re: Pillow splint/not the statue of liberty
Thanks everyone we are done for the day EMG wasn't that bad saw Dr Nath. Now we are off to eat. Sugery at 9:30 tomorrow morning. Dr Nath made me feel better about the splint and frankie has named it Dave. Bye for now Mare
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: Pillow splint/not the statue of liberty
You GO, Frankie AND Dave!!!
HUGS,
Carolyn J
Adult LOBPI,68
PS (I wish I had had a chance to have a "Dave"...)
HUGS,
Carolyn J
Adult LOBPI,68
PS (I wish I had had a chance to have a "Dave"...)
Carolyn J
Adult LOBPI
Adult LOBPI
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Kath
- Posts: 3242
- Joined: Mon Nov 18, 2002 4:11 pm
- Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
- Location: New York
Re: Pillow splint/not the statue of liberty
Well I see Frankie has his humor in tact...
Good for him!
I will be thinking of you all tomorrow and hope that Dave works out well and comfortable... LOL..
Kath (adult/robpi)
Good for him!
I will be thinking of you all tomorrow and hope that Dave works out well and comfortable... LOL..
Kath (adult/robpi)
Kath robpi/adult
Kathleen Mallozzi
Kathleen Mallozzi
Re: Pillow splint/not the statue of liberty
Dave....too cute:) I know everything will go great today. I will keep you guys in my thoughts and prayers today
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: Pillow splint/not the statue of liberty
Frankie, Dave & MOM,
I'm thinking of you today and sending you Prayers and...
HUGS,HUGS, HUGS,
Carolyn J
Adult LOBPI
I'm thinking of you today and sending you Prayers and...
HUGS,HUGS, HUGS,
Carolyn J
Adult LOBPI
Carolyn J
Adult LOBPI
Adult LOBPI
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rachelcasa
- Posts: 729
- Joined: Mon Apr 21, 2003 11:45 pm
Re: Pillow splint/not the statue of liberty
Mare,
I had the pillow sling or splint. Is it the one where you have to keep adding foam to it to keep it elevated? I'm glad that I had that one rather than the statue of liberty being an adult. It was a pain in the rear but the results turned out very well for me. I hope all works for you too.
I had the pillow sling or splint. Is it the one where you have to keep adding foam to it to keep it elevated? I'm glad that I had that one rather than the statue of liberty being an adult. It was a pain in the rear but the results turned out very well for me. I hope all works for you too.
Re: Pillow splint/not the statue of liberty
All I can say is I Hate Velco this thing never goes on the same way twice and its always sliping around and they haven't even begun to add to it. But we have made it to 1 week as of tomorrow it will be on for 2 more weeks 24/7 then 3 months sleeping with it as it grows. Did you have PT the first 3 weeks frankie says it hurt to move it up any because of the stiches I kinda want to leave him alone till they desolve but don't know if I should in the mean time I'm trying to find a Good OT/Pt
Mare
Mare
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: Pillow splint/not the statue of liberty
Mare,
...About the slipping Velcro..I have learned that it needs to be cleaned of lint & dirt with a wire brush or grooming comb for Pets then it sticks good again. Dirt & lint have a way of mucking it up so I clean my Velcro shoes & clothing when slipping happens.(Just another tip from an 'ole timer Velcro user..lol)
HUGS all around,
Carolyn J
LOBPI,68 & proud of it!
[did 'ja notice I have to say that once a day??!!..LOL]
...About the slipping Velcro..I have learned that it needs to be cleaned of lint & dirt with a wire brush or grooming comb for Pets then it sticks good again. Dirt & lint have a way of mucking it up so I clean my Velcro shoes & clothing when slipping happens.(Just another tip from an 'ole timer Velcro user..lol)
HUGS all around,
Carolyn J
LOBPI,68 & proud of it!
[did 'ja notice I have to say that once a day??!!..LOL]
Carolyn J
Adult LOBPI
Adult LOBPI