need to vent

Forum for parents of injured who are seeking information from other parents or people living with the injury. All welcome
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brandonsmom
Posts: 1401
Joined: Mon Nov 22, 2004 4:43 pm

Re: need to vent

Post by brandonsmom »

Thank you for that thought Carolyn. Just when we got our 90-95% function, more than we ever expected, all this other stuff comes up. I guess you are right, we just have to keep plugging.....By the way.......it's not easy being a BPI mommy either.....ha, HA
Gayle
david'smom
Posts: 43
Joined: Tue May 03, 2005 11:00 am

Re: need to vent

Post by david'smom »

IT IS SO NICE TO KNOW WE ARE NOT ALONE IN THIS BATTLE HAVE A HAPPY THANKSGIVING ..AND THANK YOU ...MONA
Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
Contact:

Re: need to vent

Post by Carolyn J »

YAAAH!!, KEEP your sense of HUMOR, Gayle. It'll get ya' through alot of the yucky stuff!!
Hugs,& Camp 2007 or Bust!,
Carolyn J
Carolyn J
Adult LOBPI
jai6638
Posts: 6
Joined: Sun Nov 27, 2005 2:30 am

Re: need to vent

Post by jai6638 »

Im not sure if children have problems specifically when they switch from left to right or generally when they switch hands?

I was oroginally right handed but was made a lefty due to ERbs palsy in right arm... I dont think I have any major issues that could be a cause of switching hands.....

just my $.02


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Cara
Posts: 497
Joined: Mon Nov 05, 2001 9:34 pm
Injury Description, Date, extent, surgical intervention etc: My oldest daughter suffered a LOBPI. We were sent home form the hospital without being told anything was wrong. She had nerve graft surgery at one year of age, tendon transfer and release at 3 1/2 yrs of age.
Location: Indiana

Re: need to vent

Post by Cara »

Hopefully this will give some comfort....
Handedness is not fully determined until children are generally between 7 to 9 years of age. I know this goes against what we see happening in schools though. Handeness is also conected to dominate side of brain. There are tons of test available for this in older children and adults. People who tend to have weaker dominaces have less difficulty with handedness issues. You can promote whole brain use or brain balance. Activities that cross midline help (midline is the line from the top of your head running down your nose all the way down to your feet) I do midline activities with my daughter. It can be tricky with the limitations in range of motion our kids have. I am a teacher and I've had stuff on brain research in my Master's classes and have been to a couple of workshops. I regret that I sold my book back at the end of the class(needed the $$ though, I finished the class right before my daughter had primary surgery) I will see if I can find my syllabus and post the info.
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