Chicago BPI Group needs YOU!

[Kath]

It would be great to have written information for the new bpi parents.
It should be hospital policy to bring in some emotional support for the family just as they do for other newborn issues.

I also think that all infants with any type of injury (mild transient included) should be seen by a neurologist immediately after birth and he should be the one to teach the parents ROM.

Two of my granddaughter were born 3 months premature and while that is a whole different issue and life threatening requiring 3 months in NICU.
I was given a pamphlet for grandparents explaining how to adjust their ages...
I was also included in a visit with the neonatologist who explained in detail what to expect.

I think the same consideration and support could be given to the bpi parents during their short stay in the hospitals after birth.
That is the only way that babies will be assured of proper and immediate care and also parents could be assured that they are not alone.
Kath (adult/obpi)

[TNT1999]

Rather than re-invent the wheel, here you go:

http://ubpn.org/awareness/A2002newparents.pdf

I think this brochure is very comprehensive, yet not too overwhelming for a parent of a newborn. The only things I would suggest is adding the website www.nichcy.org as a reference (perhaps where it talks about EI), adding your local support group contact info. where it talks about finding a local support group, maybe listing local drs. / therapists, and perhaps making a suggestion to write down notes about everything they remember about their prenatal care and more importantly about their L&D / hospital stay in case they later decide to file a lawsuit.

~Tina, bpmom@comcast.net

[Grandma Lou in NH]

How about listing web sites. Two that come to my mind, as being the most helpful to me.

www.injurednewborn.com and ubpn.org

What a great idea you have. Good luck, Lou

[admin]

bump

[admin]

good service

[JamieMarie'smommie]

I love the handout idea. I agree with having the checklist and with having the websites and/or maybe putting the UBPN phone number.

I wish the doctors and nurses would have just told me what was wrong with Jamie when I had her instead I had to read that she had a BPI when I pulled all the records from the hospital.