Tracy,
I forgot to say please share with us what your new Dr. tells you and/or refers you.I hope you get some relief soon.
Your Mother is an Angel!!
Hugs,
Carolyn J
losing strength in affected arm
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: losing strength in affected arm
Carolyn J
Adult LOBPI
Adult LOBPI
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FullofFaith
- Posts: 14
- Joined: Tue Oct 04, 2005 8:30 pm
Re: losing strength in affected arm
Hello everyone,
I have had a long day. It took us about three hours to get to Nashville, had to stop a couple of times and move around, but we finally have some long awaited answers. The doctor I seen today is an asst. prof. in neurology. He said that my R shoulder is frozen and although what my mom has been doing was good he wants me to go into "formal" Physical Therapy. "Diagnosis" states R erb's palsy Right Upper Extremity weakness and decreased ROM from contractures. He also has diagonosed Reflex Sympathetic Dystrophy(my GP suggested this a while back but wanted a second opinion). He has referred me to a NeuroMuscular Dr. there at Vanderbilt in Nashville. So it looks like I get to keep my mind active. More research. LOL!! I am going to call around tomorrow to try to find a physical therapists that will take payments as I have still not heard anything on my disability. I have put PT off as long as I can. I am going to call SSA tommorow also and update them. Oh yeah, I am going to be continuing what has got me this far--PRAYER--! All for now--really tired--thanks again for your support!!
Tracy
I have had a long day. It took us about three hours to get to Nashville, had to stop a couple of times and move around, but we finally have some long awaited answers. The doctor I seen today is an asst. prof. in neurology. He said that my R shoulder is frozen and although what my mom has been doing was good he wants me to go into "formal" Physical Therapy. "Diagnosis" states R erb's palsy Right Upper Extremity weakness and decreased ROM from contractures. He also has diagonosed Reflex Sympathetic Dystrophy(my GP suggested this a while back but wanted a second opinion). He has referred me to a NeuroMuscular Dr. there at Vanderbilt in Nashville. So it looks like I get to keep my mind active. More research. LOL!! I am going to call around tomorrow to try to find a physical therapists that will take payments as I have still not heard anything on my disability. I have put PT off as long as I can. I am going to call SSA tommorow also and update them. Oh yeah, I am going to be continuing what has got me this far--PRAYER--! All for now--really tired--thanks again for your support!!
Tracy