New Brachial Plexus Palsy Foundation Site

[Mandie]

Mind if i ask who is was that called you? I might already "know" them.

[Allison]

Hi Mandie, it was me that called. Just wanted to add, for those concerned about listing their phone number to apply, please note, the phone number will not be displayed on the internet for public access. It's just needed so one of the caretakers can call to verify authenticity:-) The caretakers have thought long and hard about the steps needed too, and will continue too, keep the board a safe environment for folks to visit.

[admin]

Allison,

You should have been more forthright in your earlier reply to introduce yourself as associated with the new web site.

[PeggyUBPN]

I've read the "Support Board Intentions & Guidelines"
for this new site and while I'm all for people getting the support they need/want, I prefer this forum. The guidelines feel too restrictive to me and the term "caretaker" makes me think of a graveyard or someone needing to take care of others who cannot take care of themselves. I also saw remarks re: "dark humor" , "guest posts", etc. that seem obviously directed at the UBPN message boards and I find it unnerving. If you want to create your own forum, why not do so without being critical of a site you obviously used and now advertise on.

[admin]

I have been thinking about taking part in the new forum also, but feel that the rules are remarking against this forum and group. I understand that many people are helping out as care takers, but I am also aware that there are people in charge that are hiding behind other names as I have heard it. So I think it would make much sense to advertise here only if you are willing to come forward as the owner and as the person responsible for creating such a forum and website.

[dmom]

I have nothing at all to do with this new website (although I think it looks really great!), but I do have an observation to share in reading this thread.

To the last poster ... "Guest" ... how can you possibly take someone to task for hiding their identity when YOU'RE posting under a fake name? And what's with the veiled accusations against the creators of the new site?

C'mon, guys, let's support each other!

[admin]

We are all in the same boat and if that site helps to get out more info and possibly prevents an injury to a baby or helps someone go for it . Ith ink thats great more sites and more info the better.

[B.V.]

Janet,
You impress me so much everytime I read your posts. You have a good head on your shoulders and know how to communicate clearly and respectively. Good insight.
I haven't seen the new site but I certainly hope UPBN doesn't feel threatened. Nothing is wrong with alternatives and choices. They might have something to offer that this site doesn't and visa versa. They might moderate it differently and if anyone is "unnerved" then they need to remind themselves that we all have different viewpoints and comfort zones as far as who we reveal our pain, passions, experiences and stories to. If people don't feel "safe" here, then having another site is an option. If people are getting support, encouragement and information there then the BPI community is overall better off.

[jeni]

My 2 cents, for what it's worth....The more info out about BPI the better, as long as the info is correct. we all know that there is a lot of bull S**t out there about how this injury happens.

The info on the other site is correct, and can be a wonderful help to people. I, for one, like the fact that there will be only "real" people there. I can relax about what I say, and vent if I need too.

That being said, I have vented and posted here, under my name, under "guest", under "null", and under "anon 4 legal" It all depends on the subject matter, because I am in a legal battle for my daughter, and have been told not to use my name because the defence lawyers lurk and can find my info. If my attorney can find it so can the other side.

If there is another board with the same mom's and dad's going thru the same thing as me, why shouldn't we be able to vent, scream, rejoice, and laugh without the fear that what we say can be used against us. Or the fear that some "guest" is out to stir up trouble and fights.
The board is choice. If you don't like it, don't do it. I for one like the option of having many different avenues to speak

[LoriV]

I am going to move way out of my comfort zone and reply to this post because I have already signed up for this new message board.

I'll start out by saying that this and other websites (but mostly this one) have been invaluable to me for the past 6 months. There hasn't been a day that has gone by that I have not come here to read the messages.

However, I have not posted very often - for a number of reasons. (1) We are still new to this whole thing and we are really more on the receiving than giving end when it comes to advice. (2) I have noticed that, in general, the people who post here often seem to get lots of responses to their questions, while people who don't post quite as often receive far fewer responses. I hope nobody takes offense to this. I don't mean it as a slam against anyone, it's just the way I see it and what I personally have experienced the few times I have posted a question. And I do understand that a lot of you have known each other for a long time and it's like talking with a friend, which makes sense. (3) I have seen other people get some very nasty replies. To be honest with you, I am afraid of that happening to me. I would take it personally.

When I saw this new board available, it was appealing to me because of the policy of no doctors, lawyers and guest posters. I am also still in the "information obsessive" stage (as I believe I read someone else put it) and I am signing up for anything having to do with BPI.

I will still come here every day as I have been doing already, this is just another place for me to gather information - in a slightly different setting.