Hey every one, just wanted to let you know thhat there is an update on my site about my doctors appointment and some about camp. www.freewebs.com/bpimn
Missing you all, wishing that camp was longer! Hope that all is well,
Hugs,
Amy 18 ROBPI from MN
update
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hope16_05
- Posts: 1670
- Joined: Tue Jul 01, 2003 11:33 am
- Injury Description, Date, extent, surgical intervention etc: 28 years old with a right obstetrical brachial plexus injury. 5 surgeries to date with pretty decent results. Last surgery resolved years of pain in my right arm however, I am beginning my journey with overuse in my left arm
- Location: Minnesota
- Contact:
update
Amy 28 years old ROBPI from MN
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Kath
- Posts: 3242
- Joined: Mon Nov 18, 2002 4:11 pm
- Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
- Location: New York
Re: update
Amy
I am so happy for you!
I did not believe that the steroids would work so well.
Maybe I will get them in my lower spine after reading your report. Your my hero I was afraid of them.
I love your website and journal.
I was so happy to meet you at camp.
I was looking forward to it and your are as nice as all your posts... OK...
I know most people don't like to be called sweet but you are a sweetie.
Kath (adult/obpi 65)
Here is a link to Amy's page for those who are not up yet on their computer skills ( the older folks like me)
http://www.freewebs.com/bpimn/currentjournal.htm
I am so happy for you!
I did not believe that the steroids would work so well.
Maybe I will get them in my lower spine after reading your report. Your my hero I was afraid of them.
I love your website and journal.
I was so happy to meet you at camp.
I was looking forward to it and your are as nice as all your posts... OK...
I know most people don't like to be called sweet but you are a sweetie.
Kath (adult/obpi 65)
Here is a link to Amy's page for those who are not up yet on their computer skills ( the older folks like me)
http://www.freewebs.com/bpimn/currentjournal.htm
Kath robpi/adult
Kathleen Mallozzi
Kathleen Mallozzi
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hope16_05
- Posts: 1670
- Joined: Tue Jul 01, 2003 11:33 am
- Injury Description, Date, extent, surgical intervention etc: 28 years old with a right obstetrical brachial plexus injury. 5 surgeries to date with pretty decent results. Last surgery resolved years of pain in my right arm however, I am beginning my journey with overuse in my left arm
- Location: Minnesota
- Contact:
Re: update
Thanks you so much Kath! I really looked forward to meeting you at camp and I am so glad that I did. You guys are my inspiration, thank you.
To tell the truth, I was scared of the steroid too, just because I am going into a health feild and that does not look good, but I am so happy that I tried it. It is absolutely amazing, instant relief that is lasting. Depending on where you get the injection they use a navacain like med to numb it up so I hardly felt it at all. Much happier person now that I am pain free! Now just to get the concentration part down and I am set. Speaking of that I gotta go work on a paper I have due on Thursday. and then study for chemistry, test on Wednesday. Yikes.
Hugs,
Amy 18 ROBPI from MN
ps you can call me sweet any day. lol I dont mind and it better than being sour. lol
To tell the truth, I was scared of the steroid too, just because I am going into a health feild and that does not look good, but I am so happy that I tried it. It is absolutely amazing, instant relief that is lasting. Depending on where you get the injection they use a navacain like med to numb it up so I hardly felt it at all. Much happier person now that I am pain free! Now just to get the concentration part down and I am set. Speaking of that I gotta go work on a paper I have due on Thursday. and then study for chemistry, test on Wednesday. Yikes.
Hugs,
Amy 18 ROBPI from MN
ps you can call me sweet any day. lol I dont mind and it better than being sour. lol
Amy 28 years old ROBPI from MN
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: update
Hi Amy...I think you are a Sweetie too,
I am so glad for your update and I surely believe that you are a role model of courage for trying the steriod injection for your pain 1st, rather than going straight to the surgery choice. I hope you do well in chemistry this week, let us know OK?
I loved talking to you too and I look forward to Wa. Camp 2007 and hopefully I won't have to have as many naps as I did this time,so I can visit more with y'all. I especially want to keep up with your studies and your BPI journey. Yes, we CAN achieve anything we set our minds too.
BTW, is your Doctor planning on continuing to follow you for his BPI research after you leave Shriner's at age 21?
Hugs,
Carolyn J
Adult LOBPI
I am so glad for your update and I surely believe that you are a role model of courage for trying the steriod injection for your pain 1st, rather than going straight to the surgery choice. I hope you do well in chemistry this week, let us know OK?
I loved talking to you too and I look forward to Wa. Camp 2007 and hopefully I won't have to have as many naps as I did this time,so I can visit more with y'all. I especially want to keep up with your studies and your BPI journey. Yes, we CAN achieve anything we set our minds too.
BTW, is your Doctor planning on continuing to follow you for his BPI research after you leave Shriner's at age 21?
Hugs,
Carolyn J
Adult LOBPI
Carolyn J
Adult LOBPI
Adult LOBPI
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hope16_05
- Posts: 1670
- Joined: Tue Jul 01, 2003 11:33 am
- Injury Description, Date, extent, surgical intervention etc: 28 years old with a right obstetrical brachial plexus injury. 5 surgeries to date with pretty decent results. Last surgery resolved years of pain in my right arm however, I am beginning my journey with overuse in my left arm
- Location: Minnesota
- Contact:
Re: update
Thank Carolyn,
You are sweet too. Thanks for having most of your meals with me, I enjoyed your company.
I am starting to save now, and I will do what ever it takes to get to camp in 2007, I just cant wait to see every one again.
I am actually emailing my doctor to see if he sees adults at his other practice, he currently works at Shriners hospital in minneapolis/ st paul minnesota however his main practice is at Mayo clinic in Rochester, MN. So I emailed him to see what his age range is. I really hope he continues to follow me, he is really great.
Hugs,
Amy 18 ROBPI from MN
You are sweet too. Thanks for having most of your meals with me, I enjoyed your company.
I am starting to save now, and I will do what ever it takes to get to camp in 2007, I just cant wait to see every one again.
I am actually emailing my doctor to see if he sees adults at his other practice, he currently works at Shriners hospital in minneapolis/ st paul minnesota however his main practice is at Mayo clinic in Rochester, MN. So I emailed him to see what his age range is. I really hope he continues to follow me, he is really great.
Hugs,
Amy 18 ROBPI from MN
Amy 28 years old ROBPI from MN
Re: update
Amy,
I'm still playing catch up, but wanted you to know that I'm so glad we had a chance to talk before you left Sunday! I think you are fabulous and I know you are going to do great things!
Take care! Can't wait to see you again in 2007!
Peggy
I'm still playing catch up, but wanted you to know that I'm so glad we had a chance to talk before you left Sunday! I think you are fabulous and I know you are going to do great things!
Take care! Can't wait to see you again in 2007!
Peggy
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Judy-T
- Posts: 557
- Joined: Fri Nov 02, 2001 11:59 am
- Injury Description, Date, extent, surgical intervention etc: Right arm OBPI One surgery at age 40 Ulnar nerve retransposition
- Location: Florida
Re: update
Amy, It was nice meeting you at camp. I read your site and am so happy that your pain free. Good luck in school!