hi,my name is eathar..4yrs ago my sister was born ,unfortunatly she was too big (5 kg)so they had to pull her hardly around her neck!!her left hand was totally paralysed and we were told that this is just temporary,but..she used to move her hand randomly so we thought that her hand start to recover,untill she became 4months when the doctor told us that there is a cut in her nerves and she need grafting after another 4 months,she did the operation when she was 9 months by a visitor doctor out of the country,the grafting was done using nerve fibers from her legs.
year after year there is some progression but incomplete ..wht is scaring us most is the deformation we noticed although she is undergoing physical therapy..now after all they said that she needs another operation as regard for her musles plus nerves..
our problem is that we feel that there is no one can know wht r the affected nerves and as i told u the sergeon is a visitor frome france i think!!soo difficult to keep in contact with him!!!
plz i'm asking for help ..
4 yrs searching for solution
Re: 4 yrs searching for solution
plz any one can help??i am not living inside the country which makes the matter a bit difficult..
plz respond!!
plz respond!!
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hope16_05
- Posts: 1670
- Joined: Tue Jul 01, 2003 11:33 am
- Injury Description, Date, extent, surgical intervention etc: 28 years old with a right obstetrical brachial plexus injury. 5 surgeries to date with pretty decent results. Last surgery resolved years of pain in my right arm however, I am beginning my journey with overuse in my left arm
- Location: Minnesota
- Contact:
Re: 4 yrs searching for solution
Eathar,
It might help if we knew what country you are from. There is a medical directory on this site, maybe there is a doctor from your country. Or you can try emailing several of the bpi specialists from the states and see what they think, are you in a position that you can travel to get medical care?
I hope that this helps. Good luck!
Hugs,
Amy 18 ROBPI from MN
It might help if we knew what country you are from. There is a medical directory on this site, maybe there is a doctor from your country. Or you can try emailing several of the bpi specialists from the states and see what they think, are you in a position that you can travel to get medical care?
I hope that this helps. Good luck!
Hugs,
Amy 18 ROBPI from MN
Amy 28 years old ROBPI from MN
Re: 4 yrs searching for solution
I live in the middle east..dubai,united arab emirates.
me and my family are ready to do whtever it needs ,but at least i want to do the first step from here ..if there is any adress to send informaitions or any thing that can help i am redy to do.
i hope hearing from u .
me and my family are ready to do whtever it needs ,but at least i want to do the first step from here ..if there is any adress to send informaitions or any thing that can help i am redy to do.
i hope hearing from u .
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Kath
- Posts: 3242
- Joined: Mon Nov 18, 2002 4:11 pm
- Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
- Location: New York
Re: 4 yrs searching for solution
Eathar
We have a medical Resource Directory at this website.
http://ubpn.org/medicalresources/
I do not see a list for your country but there are doctors in the UK and Europe they may be able to give you information on bpi specialist in your country.
I attended the
XIV International Symposium on Brachial Plexus Surgery
Club A. Narakas in Brescia Italy last October
http://www.studioprogress.it/html/narakasprogr.htm
I see a doctor listed from your country perhaps you could contact him.
M. ALQattan (Ryiadh , Saudi Arabia)
The value of Horner sign
This program contains a list of doctors who presented papers.
These are doctors from all over the world.
I hope this will help you to contact someone close to home.
Kath (adult/obpi)
We have a medical Resource Directory at this website.
http://ubpn.org/medicalresources/
I do not see a list for your country but there are doctors in the UK and Europe they may be able to give you information on bpi specialist in your country.
I attended the
XIV International Symposium on Brachial Plexus Surgery
Club A. Narakas in Brescia Italy last October
http://www.studioprogress.it/html/narakasprogr.htm
I see a doctor listed from your country perhaps you could contact him.
M. ALQattan (Ryiadh , Saudi Arabia)
The value of Horner sign
This program contains a list of doctors who presented papers.
These are doctors from all over the world.
I hope this will help you to contact someone close to home.
Kath (adult/obpi)
Kath robpi/adult
Kathleen Mallozzi
Kathleen Mallozzi
Re: 4 yrs searching for solution
THANX ALOT kath,its a plesure for me to hear from u ..
i havn't found Drs. or even refferals here in my country,but i'll do wht ever it takes to reach my goal,fly any where in this world , i just wanted to make the first step from here in order to build a hard base for the next one.
thanx again,
Eahtar
i havn't found Drs. or even refferals here in my country,but i'll do wht ever it takes to reach my goal,fly any where in this world , i just wanted to make the first step from here in order to build a hard base for the next one.
thanx again,
Eahtar