Told my daughter doesn't need to see BPI specialist until 4 months old?
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Re: Told my daughter doesn't need to see BPI specialist until 4 months old?
oops...didn't mention that I am mom to Jason, lobpi, 14 months.
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Re: Told my daughter doesn't need to see BPI specialist until 4 months old?
I am wondering if your ot even is doing the correct R.O.M. exercises. And I will bet the doc probably doesnt know what bpi stands for. I agree with Claudia and Tanya completely. Go with your gut and learn all you can about bpi. Look up range of motion exercises that should be done and look at a few of the real BPI docs and they will work with ya on a plan to get you evaluated. Dont trust any Doc or PT that doesnt make you feel comfortable. I dont.
Please get a opinion from a bpi doc and just in case start gathering all your records from the hospital and doc etc.... they have a tendancy to disappear or get altered.
Please get a opinion from a bpi doc and just in case start gathering all your records from the hospital and doc etc.... they have a tendancy to disappear or get altered.
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Re: Told my daughter doesn't need to see BPI specialist until 4 months old?
Thanks for all your responses everyone. I think my husband and I will push to see a BPI specialist. Right now I'm trying to find one near us (we're in Oregon--about an hour and a half south of Portland). The only one I can find on the list that's close to us is Dr Kit Song. Unfortunately I can't seem to find his name on our insurance provider list (double sigh). I'll be calling their office to see if they're part of my insurance.
Katep, I really like your idea of seeing a local orthopedic surgeon who can track when each set of her muscles come in. I never thought of that before. Also, does anyone know if the OT can do this too or is it better if an orthopedic surgeon does it? Like I mentioned before our OT felt that all her muscles were there (at least that's the impression he left me with).
And once again, if anyone knows of a specialist in Oregon please let me know--I'm still on the search!
Thanks so much everyone! You guys are great!
Lis
Katep, I really like your idea of seeing a local orthopedic surgeon who can track when each set of her muscles come in. I never thought of that before. Also, does anyone know if the OT can do this too or is it better if an orthopedic surgeon does it? Like I mentioned before our OT felt that all her muscles were there (at least that's the impression he left me with).
And once again, if anyone knows of a specialist in Oregon please let me know--I'm still on the search!
Thanks so much everyone! You guys are great!
Lis
Re: Told my daughter doesn't need to see BPI specialist until 4 months old?
Lis:
I love ot and pt. I think they can work wonders for our kids. But the reality is that they ARE NOT PHYSICIANS. You need to see a doctor for your child. Don't worry about where you are or they are right now. Call, email, send videos... get in touch with two or three or four of them. I know that this is a hard road. My daughter is almost 6 years old. I am still on this road. We all are.
If you need help or want to email me privately, please do... claudia@ubpn.org.
claudia
I love ot and pt. I think they can work wonders for our kids. But the reality is that they ARE NOT PHYSICIANS. You need to see a doctor for your child. Don't worry about where you are or they are right now. Call, email, send videos... get in touch with two or three or four of them. I know that this is a hard road. My daughter is almost 6 years old. I am still on this road. We all are.
If you need help or want to email me privately, please do... claudia@ubpn.org.
claudia
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Re: Told my daughter doesn't need to see BPI specialist until 4 months old?
Someone just pointed out to me that most of you travel to see your BPI specialist. I hadn't realized this yet--duh moment here I just assumed you all happened to live close enough to them (don't we all wish?).
Anyhow, this brings on another question, if you travel out-of-state (or a good driving distance) to see your BPI specialist, do you just see a local PT/OT? Or do you see the PT's and OT's at the BPI clinic too? Right now we're just going to a local children's therapy center. IF I remember right, our OT told us that he has about 4 or 5 other kids right now with this injury too--although currently our daughter is the youngest of the lot.
-Lis
Anyhow, this brings on another question, if you travel out-of-state (or a good driving distance) to see your BPI specialist, do you just see a local PT/OT? Or do you see the PT's and OT's at the BPI clinic too? Right now we're just going to a local children's therapy center. IF I remember right, our OT told us that he has about 4 or 5 other kids right now with this injury too--although currently our daughter is the youngest of the lot.
-Lis
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- Tanya in NY
- Posts: 935
- Joined: Mon May 03, 2004 10:51 am
- Injury Description, Date, extent, surgical intervention etc: I am Mom to Amber, injured at birth. I serve on the Board of Directors for UBPN, and am a labor/delivery nurse, too.
- Location: NY State
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Re: Told my daughter doesn't need to see BPI specialist until 4 months old?
We see a local OT and PT, and we do aquatics with another OT, but we travel about 5 hours one way by car to see our BPI specialist (Kozin in Philadelphia).
Tanya in NY
Tanya in NY
Tanya in NY
Amber's Mom, ROBPI, 13 years old
Amber's Mom, ROBPI, 13 years old