looking for HELp for my brother

Treatments, Rehabilitation, and Recovery
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admin
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looking for HELp for my brother

Post by admin »

Hi, my name is Linda and I'm looking for some help,answering some ?'s about TBPI.My brother was in a motorcycle accident on 7/23/05.So its been about 2 months and we still feel in the dark. we just went on 9/12 for a emg test,and met with a surgeon on 9/19.He has no movement of his left arm, can move his shoulder alittle thats it! They said he had no avulsions from a ct myelogram which was done the same day he was released from the hospital. when the EMG
was done they said he a 1 avulsion but did not say which one.then at the surgeon's office he said he did not have any.The hospital had set up appointments with
several different dotors,A orthopaedic surgeon,and a neurosurgeon. the orthopaedic surgeon was the first one we seen.we asked about having an appointment with a neurosurgeon the following week,he said he would be willing to work with him.Next thing we knew he came back in the room and said he cancelled that appt. for us.Go figure! when asked how many cases he had seen,he could'nt even give a number, all he said was not many. that not the kind of dr. I would want working on me. He seemed to anxious, and could not give us much hope even after surgery. We live in the central shenandoah valley of virginia. Does any one know of any good Dr. anywhere.There is so much about this injury that we don't understand. If anyone could please HELP with any information it would be greatly appreciated. I have been reading the message board for about aweek now,it is a great comfort to have someone else to talk to about this. Thanks and God Bless!
cbe411
Posts: 1393
Joined: Sun Jun 01, 2003 8:27 pm
Injury Description, Date, extent, surgical intervention etc: MVA in 2001, nerve graph in 2002, Median Nerve Transfer in 2004 and an unsuccessful Gracillis Muscle Transfer in 2006. I am living life and loving it! Feel free to contact me :)
Location: Grosse Pointe Woods, MI
Contact:

Re: looking for HELp for my brother

Post by cbe411 »

linda, sorry to hear about your brother.... check the medical resources diectory here http://ubpn.org/medicalresources/us-bpi.html and make sure to look for a docot who works with TBPI! Check Dr. Elkwood here too http://www.looknatural.com/html/reconstruct.html Good luck to you both!!

COurt :)
admin
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Joined: Mon Nov 16, 2009 9:59 pm

Re: looking for HELp for my brother

Post by admin »

The good news is that a ct myelogram is alot better at diagnosing an avulsion than a emg is. My 1st emg said i had avulshed the c5 and c6. a few weeks later i had a ct myelogram and it showed i had streached the c5 an c6 nerve root. then i started seeing recovery at 4 months after thee accident good luck!!
admin
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Joined: Mon Nov 16, 2009 9:59 pm

Re: looking for HELp for my brother

Post by admin »

Thanks to everyone that replied. All the information is very helpful. You are right that is good news.Hope all is still going well for you!
admin
Site Admin
Posts: 19873
Joined: Mon Nov 16, 2009 9:59 pm

Re: looking for HELp for my brother

Post by admin »

Linda - I had a similar experience -- ended up seeing Dr. Allan Friedman at Duke Univ -- which is not too far from you. He specializes in these kinds of injuries. if you can get there, I'd recommend considering him... Do hope things work out for your brother.

Dr. Allan Friedman
Physical Address:
DUMC 3807, Durham, NC 27710

Appointment Telephone:
(919) 681-6421

Fax Telephone:
(919) 681-7872
admin
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Posts: 19873
Joined: Mon Nov 16, 2009 9:59 pm

Re: looking for HELp for my brother

Post by admin »

Hi,Lee

Thanks so much for the information. Will check out
this doctor.Would love to find a doctor close to home.
We have seem a doctor at the University of Virginia,
But does'nt seem to have delt with this type injury very much.Hope things are going well for you.
Brandon_3
Posts: 155
Joined: Wed Aug 31, 2005 1:49 am

Re: looking for HELp for my brother

Post by Brandon_3 »

Go Figure, I just saw Dr. Kliot on friday to go over the results of my second emg and he said I had avulsions in c5 and c6. I am scheduled for a ct mylograph next week. I hope to hell the news is different
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