Hello All,
I am moving to the Cleveland area and we are looking a good therapist who is familiar with the mod quad procedure and who has worked with kids before and after this prcedure. I am wondering if any of you know of such a therapist or know where we should start the search?
Therapists in Cleveland
Re: Therapists in Cleveland
I don't know anything about Cleveland but in general I would tell you to contact a children's hospital or a group (like Easter Seals) that might work more with children with physical limitations. You can ask them specific questions about what they know about bpi and if they've dealt with mod quad. But sometimes if you get a really 'interested' therapist who is willing to learn and does just that, she may end up being a GREAT therapist. In 3 1/5 years I must have made probably over 100 phone calls to track down therapists. It's not an easy task to find a good 'fit'.
The BEST thing you can do as a mom is to educate yourself as much as possible about the injury, the surgery and the post op therapy protocols so that you can do therapy at home with your child every single day.
There are two very good pages on here that will be very helpful for you to have and to pass on to a therapist you might choose.
They are found here: http://ubpn.org/awareness
hit the button for Birth Injury. The first one is Margaret Storment's Therapy Protocol Page for BPI and the other one is called Stretching the Limits. If you have a good imagination - you can turn almost anything into therapy.
I also have the TCH post surgery therapy protocols on Maia's page - look in the Mod Quad section. http://www.injurednewborn.com/maia/homepage.html
Aquatic therapy is a huge plus for post mod quad kids. Try to get your little one in a warm pool (temp is important) - I also have a listing of therapy pools or how to find one, on Maia's site. Look in the therapy section.
Also -you may want to contact Karen Ritz - she runs the Columbus Support Group and she may have some family names in Cleveland area to share with you. Her email address is ohioerbspalsy@aol.org and her website is found at http://www.members.aol.com/kritz74433.
I hope this helps,
Good luck in your search,
Francine
The BEST thing you can do as a mom is to educate yourself as much as possible about the injury, the surgery and the post op therapy protocols so that you can do therapy at home with your child every single day.
There are two very good pages on here that will be very helpful for you to have and to pass on to a therapist you might choose.
They are found here: http://ubpn.org/awareness
hit the button for Birth Injury. The first one is Margaret Storment's Therapy Protocol Page for BPI and the other one is called Stretching the Limits. If you have a good imagination - you can turn almost anything into therapy.
I also have the TCH post surgery therapy protocols on Maia's page - look in the Mod Quad section. http://www.injurednewborn.com/maia/homepage.html
Aquatic therapy is a huge plus for post mod quad kids. Try to get your little one in a warm pool (temp is important) - I also have a listing of therapy pools or how to find one, on Maia's site. Look in the therapy section.
Also -you may want to contact Karen Ritz - she runs the Columbus Support Group and she may have some family names in Cleveland area to share with you. Her email address is ohioerbspalsy@aol.org and her website is found at http://www.members.aol.com/kritz74433.
I hope this helps,
Good luck in your search,
Francine
Re: Therapists in Cleveland
A mom who used to live in Cleveland (westside)was very pleased with their therapist. I'll have to e-mail her to get the therapist's name. Her son had primary surgery and mod quad.
Our picnic this year is in Columbus on June 1st. We hope you and your family can join us!
http://members.aol.com/kritz74433
Our picnic this year is in Columbus on June 1st. We hope you and your family can join us!
http://members.aol.com/kritz74433