Thought I would send out a few Links to Brachial Plexus Injury Sites for you all. If you can think of others please send them in. No Specialist Sites were listed.
Website created for and by adults who have a Trauma Brachial Plexus Injury. Based in the UK. Introduction, FAQ Section, Anatomy coming soon, Medical Information, Resources, Community Section, Donation Page, Squires Meeting Section, One Paw Flail Arm Sling, Registration, Message Board, Guest Book, The Cave, Newsletter, Contacts& Links, and Raspberries Section.
http://www.tbpiukgroup.homestead.com
Connecticut Erb's Palsy and BPI Circle. Has support board, BPI Resource section, Photos, Poems& Writings, and Connecticut Info.
http://www.ctepbpicircle.com
Chicago Brachial Plexus Injury Support Group Inc. Events page, Resources, FAQ Section, Donation page, Photos, Forum, and Links section.
http://www.chicagobpi.com
Brachial Plexus Palsy Foundation (BPPF) New parents section, Information, Prevention, Support Board, Family Gathering Section, Photo Gallery, Contribution Section, Donation Cards, and Dedication page.
http://www.brachialplexuspalsyfoundation.org
United Brachial Plexus Network. Resources, Information Section, Message Boards, Medical Resource & Information Section, President's Corner, Links, Interactive Resources, Outreach Newsletter sign up, UBPN Camp Section, Hands Across America Project Information, FAQ, Brachial Plexus Injury Prevention Program (BPIPP) Section, New Registry, Donor Acknowledgement area, and Awareness Section.
http://ubpn.org
Obstetrical Brachial Plexus Injury (OBPI) website created by Francine Litz. Dino T-Shirts, Information on Prevention, Books, Maia's Site, and Links,
http://www.injurednewborn.com
Midwest Brachial Plexus Network, Inc. New Parents Section, Legal Information, Services, Treatment Page, Donation Page, Events, Articles, FAQ Section, and Links.
http://www.birthinjury.org
Dallas/Ft. Worth Brachial Plexus Injury Support Group! Calendar,Links, and Announcements.
http://www.dfwbpi.com
National Brachial Plexus/Erb's Palsy Association, Inc. (archived site) Information, Interaction, Swim Therapy Section, How to's for Support Groups Section, OBGYN Section, Doctor's Corner, Advocacy and Legal Section, Ambassador Page, Flight and Lodging Assistance page, Range of Motion Exercises Section, EMG/MRI info, Anatomy, One Hand Typing Page, Tying Shoes One Handed Page, and various other issues.
http://www.nbpepa.org
My Erb's Place Store. Place to purchase Awareness items.
http://www.cafepress.com/erbpalsy
FYI-BPI Sites
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Brenda333
- Posts: 217
- Joined: Mon Nov 18, 2002 6:59 pm
- Injury Description, Date, extent, surgical intervention etc: Daughter has global palsy (c5-T1 injury) 5 surgeries at Texas Children's by Dr
Laurent, Shenaq, and Nath. 1st Surel graft 2nd Intercostal transfer 3rd Latisimus Dorsi transfer with subscapular release 4th Pec release 5th Bicep lenghtening, (which weakened her bicep, and contracture returned.) Has went through serial casting with fair results. Her arm is about a hand shorter then the other. She has limited hand function. (able to grasp) Arm stays pronated. Unable to get to neutral. Now dealing with sternoclavicular subluxation. All that being said....She is very functional. She is a very determined, strong, tenacious young woman. Now 15. She plays the trumpet, french horn, drums, guitar, and now learning piano. Has always played on a softball, and basketball team. Until recently, for fear of further injury due to the sternoclavicular subluxation. (separation of colarbone from sternum) Not sure if all this is spelled right.
-- - Location: Wisconsin
- Contact: