Un-Even Shoulders

This board is for adults and teens to discuss issues relating to BPI since birth (OBPI).
espiper
Posts: 61
Joined: Mon Jan 10, 2005 12:45 pm

Re: Un-Even Shoulders

Post by espiper »

sorry, suzy here - (503) 880-4682
Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

Re: Un-Even Shoulders

Post by Kath »

Suzy
I know what you mean about spell check.
I discovered that google has a spell check for the web.
I feel I lost my spelling ability when I lost my dominate hand.,
Kath
Kath robpi/adult

Kathleen Mallozzi
admin
Site Admin
Posts: 19873
Joined: Mon Nov 16, 2009 9:59 pm

Re: Un-Even Shoulders

Post by admin »

Thank you, I actually think I get the stretches! I'll try them a few more times out on me, but I may give you a call...Thanks again, this is really helpful stuff!
katep
Posts: 1240
Joined: Mon Mar 29, 2004 3:20 pm

Re: Un-Even Shoulders

Post by katep »

Suzy,

Thanks so much for the description of these stretches! I have a perpetual problem with my upper traps being tight (that's just me, nothing to do with BPI) and I tried these stretches... WOW! They feel wonderful!!

Kate
Eileen and Kaitlin
Posts: 7
Joined: Wed Aug 17, 2005 12:27 am

Re: Un-Even Shoulders

Post by Eileen and Kaitlin »

Thanks for the idea - just wanted to know how comfortable the silicone was and if there was any discomfort when it was removed. My daughter's skin seems very sensitive but she also has the same problem.
Eileen and Kaitlin
Posts: 7
Joined: Wed Aug 17, 2005 12:27 am

Re: Un-Even Shoulders

Post by Eileen and Kaitlin »

Hi Kath,
Kaitin also has red hair and freckles. She also has a lot of sensory issues! We did a ton of infant massages but she will not wear anything tight. She just stopped wearing her socks inside out but only has one brand that she will wear. When she was little, dance recitals were a nightmare.
Eileen
admin
Site Admin
Posts: 19873
Joined: Mon Nov 16, 2009 9:59 pm

Re: Un-Even Shoulders

Post by admin »

Did you all hear off the latest findings with redheads having a higher pain threshold and requiring different anesthesia levels? Probably KateP can pinpoint the studies and give a read on how real or fluffy they are, but it was on the news last week as one of those "isn't this weird" stories. Funny eh?
Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
Contact:

Re: Un-Even Shoulders

Post by Carolyn J »

Suzy,
These stretches have helped me too. I cannot afford massages, so it works great to loosen my shoulders which have always been tight, especially after an hour on the computer. Those letters I had to type out individually for our Camp 2005 Capital Hill visit requests were murder on me and took me 5 hours to do. It's only because I felt sorry for all you board members from WA that I suffered thru it!!.....poor Carolyn,boo hoo!!LOL--yes I amLOL!

Hugs all around,
Carolyn J
Carolyn J
Adult LOBPI
Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

Re: Un-Even Shoulders

Post by Kath »

Lisa
I think it was a study at National Institute of Health.
I always have trouble with anesthesia. It's crazy first they can't get me to sleep and then they can't wake me up... I wake up laughing for some reason or another.

When I was much younger the doctor use to tell me it was not good to ignore pain, he said Irish had high pain threshold and the fact that I was a redhead added to it. I thought he was just making it up...

I thought I was the only one who paid attention to that news slot... and the one that said red hair is very rare... duh not in my family... LOL.

Kath
Kath robpi/adult

Kathleen Mallozzi
admin
Site Admin
Posts: 19873
Joined: Mon Nov 16, 2009 9:59 pm

Re: Un-Even Shoulders

Post by admin »

And here I thought the high pain threshold in Irish was from our stubborness (won't let a bit o pain stop us!!), now I guess there's more to it in our genes!!!

Funny what you said about the anesthesia. My other dd, non-bpi, and started red then turned blonde (we have lots of red in our family too) had tubes put in her ears. The doc said that most kids go under quickly. They have the parents hold them as they go under and he said that rarely do the kids fight the anesthesia. He was shocked at how long my daughter fought going under, had never seen a kid last that long! I, of course, was heartbroken holding her as she struggled to stay awake and then finally went limp under the anesthesia. I don't know if she took awhile coming out though....hmmm.
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