I would love if everyone might try to remember to include your children's ages in your posts. Although I don't always remember to include it either, I try my best, and I know some people are really great about including it. I think it is so helpful to know the ages when trying to figure out this journey, and I've noticed that many times people have to ask for the age after a particularly helpful post.
I had suggested to the board that maybe it might be helpful if there was a permanent field for the child's birthday that would show up next to the subject or something like that. Anyone else agree or am I too detail-oriented.
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey". There is NO SUCH THING AS A DUMB QUESTION. Sharing helps to Heal. HUGS do too.
I'm not sure that the software for the message boards would accomodate that; and if it does, I'm not sure how much work it would take to make that happen, but...thanks for bringing it up.
I have two children that suffered OBPIs. Joel, 11 years old on Friday, had a "transient" LOBPI. He does have very slight residual affects in his scapula and supination.
Emma, age 9, ROBPI all nerves affected, avulsed C7, large neuroma over the rootlets of C5 &C6, the rest ovestretched beyond going back. She has had 3 surgeries to date.
Right now we are trying to overcome Emma's severe eczema outbreak. She's had it for several months, been sick off and on because she's scratched herself to the point of infection. FINALLY we were sent to a dermatologist and she is on specific ointments and allergy meds and antibiotics and it seems to be starting to clear up! She is only using oatmeal soap/shampoo, etc. No more dryer sheets and cotton and linen clothing until she is completely healed.
Injury Description, Date, extent, surgical intervention etc: LOBPI no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth 1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008.
I agree. I always try to include our son's age (Chase age 7 LTBPI) when I post because I think there are different issues/stages depending on their ages and type of injury.
I too think it's very helpful to have this info. on posts and I try to post it esp. when I think it's relevant to what I posted. Another idea might be for people to have login IDs similar to another support board I know, where people's ID is in the format: ParentsNameChildsNameYrChildBorn, so for me I would use "TinaNicole1999" I don't know how people feel about changing login IDs, but that's just an idea. I don't know if anyone ever noticed, but I use Nicole's year of birth in my ID ("TNT1999") and the TNT actually came from the first initials of our names (Troy Nicole Tina).
~Tina (Mom to Nicole, 6 y.o. w/LBPI & Joshua, 1 y.o. w/NOBPI) *I just saw this (NOBPI) on another post and loved it. I hope the Mom doesn't mind me stealing her idea!! O:)
