Check out the New Brachial Plexus Palsy Foundation Site.
http://www.brachialplexuspalsyfoundation.org/
FYI
New Brachial Plexus Palsy Foundation Site
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Brenda333
- Posts: 217
- Joined: Mon Nov 18, 2002 6:59 pm
- Injury Description, Date, extent, surgical intervention etc: Daughter has global palsy (c5-T1 injury) 5 surgeries at Texas Children's by Dr
Laurent, Shenaq, and Nath. 1st Surel graft 2nd Intercostal transfer 3rd Latisimus Dorsi transfer with subscapular release 4th Pec release 5th Bicep lenghtening, (which weakened her bicep, and contracture returned.) Has went through serial casting with fair results. Her arm is about a hand shorter then the other. She has limited hand function. (able to grasp) Arm stays pronated. Unable to get to neutral. Now dealing with sternoclavicular subluxation. All that being said....She is very functional. She is a very determined, strong, tenacious young woman. Now 15. She plays the trumpet, french horn, drums, guitar, and now learning piano. Has always played on a softball, and basketball team. Until recently, for fear of further injury due to the sternoclavicular subluxation. (separation of colarbone from sternum) Not sure if all this is spelled right.
-- - Location: Wisconsin
- Contact:
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admin
- Site Admin
- Posts: 19873
- Joined: Mon Nov 16, 2009 9:59 pm
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admin
- Site Admin
- Posts: 19873
- Joined: Mon Nov 16, 2009 9:59 pm
Re: New Brachial Plexus Palsy Foundation Site
Pretty good site. We need to continue to be recognized and this helps alot.
Thank you
Thank you
Re: New Brachial Plexus Palsy Foundation Site
I was gonna sign up for the message board, but, why do they need your telephone number? :/ Do you know?
Re: New Brachial Plexus Palsy Foundation Site
Yes, phone numbers are needed so the caretakers can contact folks to make sure they are who they are. This is a private message board. There will be no doctors, lawyers, or guests allowed.
Re: New Brachial Plexus Palsy Foundation Site
I was contacted yesterday....and had a really wonderful conversation with the caretaker. They just want to verify you are who you say you are.
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cbe411
- Posts: 1393
- Joined: Sun Jun 01, 2003 8:27 pm
- Injury Description, Date, extent, surgical intervention etc: MVA in 2001, nerve graph in 2002, Median Nerve Transfer in 2004 and an unsuccessful Gracillis Muscle Transfer in 2006. I am living life and loving it! Feel free to contact me :)
- Location: Grosse Pointe Woods, MI
- Contact:
Re: New Brachial Plexus Palsy Foundation Site
Wouldnt it be great if we didnt have so many guest posters around here????
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cbe411
- Posts: 1393
- Joined: Sun Jun 01, 2003 8:27 pm
- Injury Description, Date, extent, surgical intervention etc: MVA in 2001, nerve graph in 2002, Median Nerve Transfer in 2004 and an unsuccessful Gracillis Muscle Transfer in 2006. I am living life and loving it! Feel free to contact me :)
- Location: Grosse Pointe Woods, MI
- Contact:
Re: New Brachial Plexus Palsy Foundation Site
Sorry let me continue with this.... not allowing guest posters ONLY makes the individual 150% responsible for what they post. UBPN offers guest posting for those in litigation but people abuse it and post as guest to start trouble or who knows why.... just my two cents.
COurt xx
COurt xx
Re: New Brachial Plexus Palsy Foundation Site
I understand about the thing with the no doctors, etc.. but if a person has been around the bpi community for a while, I don't see the need. I don't feel comfortable putting my telelephone # on the internet for a stranger, so I will just stick to this place. No biggie, I was just wondering.
Thanks Allison!
Mandie
Thanks Allison!
Mandie
Re: New Brachial Plexus Palsy Foundation Site
I was contacted this morning by the caretaker-also a great conversation (with another BPI mom). I think it will be a great site.