Vanda
My PT used the ART therapy on me and it is a strong motion and pressure. He kept asking if it hurt and I knew it was strong but it did not hurt. My arm would not extend at all and I could not get my normal ROM... it had really gotten tight and constricted.... IT IS SOOO much better now and appears better to. I found ART to be great for me.
Remember my husband does not know how to do ROM and I am not sure I would let him do it... LOL... I really needed some help and I can't say enough how well it worked on me. I also take B-12 shots monthly for the zinging/ electric shock/spasms... and I don't get them anymore. I don't know why it works on me but it has since I was in my early teens. The doctors said I needed them and whenever I have taken a series of them I do not get the shockers... of course the doctors MD fought me on it... and I think since it is not harmful I guess they just shut me up. I keep reminding them it is working... be I know they don't believe in vitamin therapy... I however really do.
Kath
Chiropractic Treatment?!!!
-
Kath
- Posts: 3242
- Joined: Mon Nov 18, 2002 4:11 pm
- Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
- Location: New York
Re: Chiropractic Treatment?!!!
Kath robpi/adult
Kathleen Mallozzi
Kathleen Mallozzi
Re: Chiropractic Treatment?!!!
A little off the topic of chiropractor treatment...
B12 has some merit for nerve pain (but I'm not sure how safe high doses would be in children). I'm a PA and sometimes use it in my mainstream internal medicine pracice for neuropathic pain; it increases arterial supply to nerves and also might somehow increase the body's natural pain relieving chemicals. We're not sure exactly how it works. Also, B12 and Folate deficiency can cause dementia and peripheral neuropathy and screening for their deficiency is an important part of the workup for those problems (point that well-known fact out to docs who reject the idea that it could possibly help neuropathic BPI pain). Studies I have read show that it's not just B12 that is important; the other B vitamins help as well, so in addition to B12 injections (because it isn't that well absorbed orally) you might consider a vitamin B complex tablet daily... it also helps protect against elevated homocysteine levels, which contribute to heart disease.
B12 has some merit for nerve pain (but I'm not sure how safe high doses would be in children). I'm a PA and sometimes use it in my mainstream internal medicine pracice for neuropathic pain; it increases arterial supply to nerves and also might somehow increase the body's natural pain relieving chemicals. We're not sure exactly how it works. Also, B12 and Folate deficiency can cause dementia and peripheral neuropathy and screening for their deficiency is an important part of the workup for those problems (point that well-known fact out to docs who reject the idea that it could possibly help neuropathic BPI pain). Studies I have read show that it's not just B12 that is important; the other B vitamins help as well, so in addition to B12 injections (because it isn't that well absorbed orally) you might consider a vitamin B complex tablet daily... it also helps protect against elevated homocysteine levels, which contribute to heart disease.
-
Kath
- Posts: 3242
- Joined: Mon Nov 18, 2002 4:11 pm
- Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
- Location: New York
Re: Chiropractic Treatment?!!!
Steff
As a small child I had to take B-1 and other B vitamins. I did not get shots until about 15 because that's when I began to complain about the pain and it seemed to be getting worse. I was lucky we had a great family physician.
I have had to fight for it for up until about 5 years ago. The only reason they finally gave in was because my family has a history of pernicious (sp) anemia... my mother her two sisters one brother had pernicious anemia and two cousins have had liver transplants. They did the test and told me I was boarder line low and the only reason I was tested was because my feet were burning. I wanted it for the pain. Thanks for confirming it... I also would not advise giving children shots but wonder about the teenagers because growth spurts really do cause problems for some of us. Read the adult/obpi message board pain questions.
I felt it was common sense... if our nervous system needs B and stress depletes B and pain creates stress we would benefit from the B shots... from what I have read there are no reports of overdose It has worked for me and the many years I could not get a doctor to prescribe it were years that I had so many problems with my arm. I feel if they would have taken the time to think and listen I would not have had to put up with the pain. My OB gave me B-12 and iron shots daily for about 9 days before my last child was born... I was so dumb I did not question him as to why... he just called me up and said I needed them....
I was always offered pain medication but would rather have the pain then go around in a fog. I was told the relief was all in my mind by one doctor... LOL... who cares if the pain is gone... so what! its better than tons of drugs and costs much less. About two years ago a neurologist told me there is no pain with Erb's Palsy this time I did not let it go I told him he was wrong and the text books need to be revised. I had no words for it as a child but I am an adult now and pain denied still exists.
Kath
As a small child I had to take B-1 and other B vitamins. I did not get shots until about 15 because that's when I began to complain about the pain and it seemed to be getting worse. I was lucky we had a great family physician.
I have had to fight for it for up until about 5 years ago. The only reason they finally gave in was because my family has a history of pernicious (sp) anemia... my mother her two sisters one brother had pernicious anemia and two cousins have had liver transplants. They did the test and told me I was boarder line low and the only reason I was tested was because my feet were burning. I wanted it for the pain. Thanks for confirming it... I also would not advise giving children shots but wonder about the teenagers because growth spurts really do cause problems for some of us. Read the adult/obpi message board pain questions.
I felt it was common sense... if our nervous system needs B and stress depletes B and pain creates stress we would benefit from the B shots... from what I have read there are no reports of overdose It has worked for me and the many years I could not get a doctor to prescribe it were years that I had so many problems with my arm. I feel if they would have taken the time to think and listen I would not have had to put up with the pain. My OB gave me B-12 and iron shots daily for about 9 days before my last child was born... I was so dumb I did not question him as to why... he just called me up and said I needed them....
I was always offered pain medication but would rather have the pain then go around in a fog. I was told the relief was all in my mind by one doctor... LOL... who cares if the pain is gone... so what! its better than tons of drugs and costs much less. About two years ago a neurologist told me there is no pain with Erb's Palsy this time I did not let it go I told him he was wrong and the text books need to be revised. I had no words for it as a child but I am an adult now and pain denied still exists.
Kath
Kath robpi/adult
Kathleen Mallozzi
Kathleen Mallozzi
-
Angela Butterfly
- Posts: 483
- Joined: Fri Jul 18, 2003 4:24 pm
Re: Chiropractic Treatment?!!!
I took all of my children to a chiropractor. As far as if it helped the BPI, I could not be sure, since I used every therapy I could do then. I certainly don't think it hurt. Actually a good family friend wanted me to take Jill immediately to her Chiro and I said I was still wading through the other doctors, my daughter only a few weeks old, and told her to hang on with that idea. Well my friend was relentless, and so we started going when she was only a few months old.
His technique was gentle and I called it acupressure.
His technique was gentle and I called it acupressure.