Long strange trip.....

This board is for adults and teens to discuss issues relating to BPI since birth (OBPI).
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Steve L.
Posts: 57
Joined: Thu Jan 10, 2002 12:14 am

Long strange trip.....

Post by Steve L. »

It's been about 2yr.s since I've been here, kinda outta touch.
Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

Re: Long strange trip.....

Post by Kath »

Steve
Is that all you can say???

Come on tell us what you've been up to and how your feeling... you know you can feel free to complain to us or brag because we truly understand...
Missed ya!
Kath
Kath robpi/adult

Kathleen Mallozzi
Steve L.
Posts: 57
Joined: Thu Jan 10, 2002 12:14 am

Re: Long strange trip.....

Post by Steve L. »

I missed ya'll too.
Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
Contact:

Re: Long strange trip.....

Post by Carolyn J »

Steve, I don't know you but I all ready love ya. I hope you share with us sometime.
Carolyn J
LOBPI,age 67
Carolyn J
Adult LOBPI
jennyb
Posts: 1183
Joined: Fri Nov 02, 2001 5:24 pm
Injury Description, Date, extent, surgical intervention etc: January 1980 Yamaha RD200 vs 16 wheeler truck, result, 1 totally paralysed right arm. I was 21, now 54. I had no surgery, I don't regret this. Decided to totally ignore limitations (easily done aged 21) adapted very quickly to one handed life, got married, had 3 kids, worked- the effect of the injury on my life (once the pain stopped being constant) was minimal and now, aged 54, I very rarely even think of it, unless I bash it or it gets cold, then I wish I'd had it amputated :) Except for a steering knob on my car, I have no adaptations to help with life, mainly because I honestly don't think of myself as disabled and the only thing I can't do is peel potatoes, which is definitely a good thing.

Re: Long strange trip.....

Post by jennyb »

Hi Steve
has it really been 2 years??!!?
GREAT to see you back, look forward to some of your pithy postings!
Take care
Jen NZ
Judy-T
Posts: 557
Joined: Fri Nov 02, 2001 11:59 am
Injury Description, Date, extent, surgical intervention etc: Right arm OBPI One surgery at age 40 Ulnar nerve retransposition
Location: Florida

Re: Long strange trip.....

Post by Judy-T »

Tell us about your trip....We missed you Steve. Welcome back.
Steve L.
Posts: 57
Joined: Thu Jan 10, 2002 12:14 am

Re: Long strange trip.....

Post by Steve L. »

Hey, Jen
It's great to see you're still here, Kath too. There's SO much to tell, great job working for a very big engineering & surveying co., kids're doin' really well blah, blah, blah. I don't know where to start. Maybe I'll just email ya' d'rectly.
Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

Re: Long strange trip.....

Post by Kath »

Steve
That's a start and all our e-mails are posted.
Yup still hanging in here and how about joining us with your family for camp this year... hey I drag my poor husband so does judy and Nancy... and John brings his wife.... we had a great time 2 years ago and even went in a cannoe.... that was a sight!
Kath
Kath robpi/adult

Kathleen Mallozzi
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