we were in Philly in may we stayed at holiday inn
it is better to take a cab & request to get there the quick way shriners is great place in a not so wonderful location & kind of difficult to find once u find it is so great & comforting
michelle in tampa
Philadelphia-Kozin
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Brenda333
- Posts: 217
- Joined: Mon Nov 18, 2002 6:59 pm
- Injury Description, Date, extent, surgical intervention etc: Daughter has global palsy (c5-T1 injury) 5 surgeries at Texas Children's by Dr
Laurent, Shenaq, and Nath. 1st Surel graft 2nd Intercostal transfer 3rd Latisimus Dorsi transfer with subscapular release 4th Pec release 5th Bicep lenghtening, (which weakened her bicep, and contracture returned.) Has went through serial casting with fair results. Her arm is about a hand shorter then the other. She has limited hand function. (able to grasp) Arm stays pronated. Unable to get to neutral. Now dealing with sternoclavicular subluxation. All that being said....She is very functional. She is a very determined, strong, tenacious young woman. Now 15. She plays the trumpet, french horn, drums, guitar, and now learning piano. Has always played on a softball, and basketball team. Until recently, for fear of further injury due to the sternoclavicular subluxation. (separation of colarbone from sternum) Not sure if all this is spelled right.
-- - Location: Wisconsin
- Contact:
Re: Philadelphia-Kozin
How old is Joey? Hope to see you there.
Brenda
Brenda
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Joann in PA
- Posts: 110
- Joined: Sat Dec 01, 2001 12:19 am
Re: Philadelphia-Kozin
Brenda...Joey is 10 years old. Actually, if this is Brenda Copeland-Moore, you were one of the very first people I ever spoke with that understood brachial plexus injuries and put me on the track towards treatment for Joey way back in the beginning! I saw the National Support Group listed in a magazine at Easter Seals...called you and you told me about Texas Childrens Hospital...the Cirenos and sent me a packet of information! I will always be grateful to you! 
)
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Brenda333
- Posts: 217
- Joined: Mon Nov 18, 2002 6:59 pm
- Injury Description, Date, extent, surgical intervention etc: Daughter has global palsy (c5-T1 injury) 5 surgeries at Texas Children's by Dr
Laurent, Shenaq, and Nath. 1st Surel graft 2nd Intercostal transfer 3rd Latisimus Dorsi transfer with subscapular release 4th Pec release 5th Bicep lenghtening, (which weakened her bicep, and contracture returned.) Has went through serial casting with fair results. Her arm is about a hand shorter then the other. She has limited hand function. (able to grasp) Arm stays pronated. Unable to get to neutral. Now dealing with sternoclavicular subluxation. All that being said....She is very functional. She is a very determined, strong, tenacious young woman. Now 15. She plays the trumpet, french horn, drums, guitar, and now learning piano. Has always played on a softball, and basketball team. Until recently, for fear of further injury due to the sternoclavicular subluxation. (separation of colarbone from sternum) Not sure if all this is spelled right.
-- - Location: Wisconsin
- Contact:
Re: Philadelphia-Kozin
Thank you. I am glad I was able to help. I will look for you there. My daughter is also 10.
Brenda
Brenda