Hey guys! As you may have seen Nancy has gotten the online registry up and running, YEAH, but I dont like the wording of OB/NON OB I like OB or traumatic..... my quesiton here is how do you refer to yourself in this manner? Maybe I am jsut weird but I look at non ob as saying Im Cara's sister not that I am Courtney. Anymore input would be great! Thanks!!
COurt xx
TBPI POLL PLEASE
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cbe411
- Posts: 1393
- Joined: Sun Jun 01, 2003 8:27 pm
- Injury Description, Date, extent, surgical intervention etc: MVA in 2001, nerve graph in 2002, Median Nerve Transfer in 2004 and an unsuccessful Gracillis Muscle Transfer in 2006. I am living life and loving it! Feel free to contact me :)
- Location: Grosse Pointe Woods, MI
- Contact:
Re: TBPI POLL PLEASE
Yes, please help us out here.
And you are sweet, Courtney, but the thanks for the hard work goes to Ryan McClune and Steve Ferguson and also John Petit!
Nancy
And you are sweet, Courtney, but the thanks for the hard work goes to Ryan McClune and Steve Ferguson and also John Petit!
Nancy
Re: TBPI POLL PLEASE
I do prefer differentiating the two by OBPI or TBPI rather than NON OBPI - that just sounds...NON. I've also noticed that some places refer to this injury as OBPI or Adult BPI which I don't care for either. My son is 7 but TBPI. He's not adult or obstetric, but we identify with/as TBPI. Still new to this, but my two cents.
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cbe411
- Posts: 1393
- Joined: Sun Jun 01, 2003 8:27 pm
- Injury Description, Date, extent, surgical intervention etc: MVA in 2001, nerve graph in 2002, Median Nerve Transfer in 2004 and an unsuccessful Gracillis Muscle Transfer in 2006. I am living life and loving it! Feel free to contact me :)
- Location: Grosse Pointe Woods, MI
- Contact:
Re: TBPI POLL PLEASE
Thanks for the correction Nancy! Thanks to Ryan, Steve, and John! You guys are the best! 
COurt xx
COurt xx
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admin
- Site Admin
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Re: TBPI POLL PLEASE
Court, I was just thinking the same thing when I registered there yesterday. They did a great job at setting this up. Thanks! Personally, I prefer "traumatic" over "non ob" also.
Lourdes, Yes, I guess our TBPI children are very few here on the boards. Its been hard catagorizing all the people. They neither fit in OBPI children or adults, and dont fit in TBPI adults. But, Im not complaining at all, just thankful for UBPN all together. Its just very sad to me to see more and more new people injured, however their injured.
Lourdes, Yes, I guess our TBPI children are very few here on the boards. Its been hard catagorizing all the people. They neither fit in OBPI children or adults, and dont fit in TBPI adults. But, Im not complaining at all, just thankful for UBPN all together. Its just very sad to me to see more and more new people injured, however their injured.
Re: TBPI POLL PLEASE
Yep...10 out 10 for setting this up. Must admit that I was a bit put off by the 'non' OBPI bit...in fact, In truth, I was very put out at first and was going to post, so thanks for getting there first Court!! :0)
Hopefully, this will be changed as soon as, otherwise I think it will put off many people from registering. Registering as a 'non OBPI' seems to me to be negating the injury, making it somehow less important unless it was caused at birth, or maybe I'm just being a bit too touchy today... :0(
No-one likes to be referred to as a 'non' anything. Most of us on 'this side' of the boards have a traumatic brachial plexus injury and personally, I have no problem naming my injury as a TBPI, and I wouldn't mind betting that no-one else here has a problem with that either.
(Sorry, baaaaad day! :0( )
Liz B
Hopefully, this will be changed as soon as, otherwise I think it will put off many people from registering. Registering as a 'non OBPI' seems to me to be negating the injury, making it somehow less important unless it was caused at birth, or maybe I'm just being a bit too touchy today... :0(
No-one likes to be referred to as a 'non' anything. Most of us on 'this side' of the boards have a traumatic brachial plexus injury and personally, I have no problem naming my injury as a TBPI, and I wouldn't mind betting that no-one else here has a problem with that either.
(Sorry, baaaaad day! :0( )
Liz B
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jennyb
- Posts: 1183
- Joined: Fri Nov 02, 2001 5:24 pm
- Injury Description, Date, extent, surgical intervention etc: January 1980 Yamaha RD200 vs 16 wheeler truck, result, 1 totally paralysed right arm. I was 21, now 54. I had no surgery, I don't regret this. Decided to totally ignore limitations (easily done aged 21) adapted very quickly to one handed life, got married, had 3 kids, worked- the effect of the injury on my life (once the pain stopped being constant) was minimal and now, aged 54, I very rarely even think of it, unless I bash it or it gets cold, then I wish I'd had it amputated :) Except for a steering knob on my car, I have no adaptations to help with life, mainly because I honestly don't think of myself as disabled and the only thing I can't do is peel potatoes, which is definitely a good thing.
Re: TBPI POLL PLEASE
Well maybe we are just irascible old hags Lizzy, because when I saw non ob I just thought.....not gonna start a punchup, but I'm not adding myself on here! I felt like an afterthought. I wondered if I was being over sensitive, so I'm glad there's a consensus on this! Obviously no offence was intended but wow it's amazing how being referred to like that gets your hackles up...:0)
Thanks for raising it Court!
Jen NZ
Thanks for raising it Court!
Jen NZ
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Kath
- Posts: 3242
- Joined: Mon Nov 18, 2002 4:11 pm
- Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
- Location: New York
Re: TBPI POLL PLEASE
No girls you are not cranky...
I think when UBPN was first formed there were not many TBPI's nor OBPI/adults... so the NON word...
I agree I would not want to be a NON anything... LOL... I was a NON injured person for 60 years... Now everyone knows when I say OBPI how I was injured.
I feel no matter what age you are or how you get the injury loosing a limb is traumatic and for you guys who remember loosing the use of your arms (even the little tbpi's) is very traumatic.
But Courtney knows this and of course UBPN does not want to disregard TBPI either.
As with all new things we are working out the kinks.
Kath
I think when UBPN was first formed there were not many TBPI's nor OBPI/adults... so the NON word...
I agree I would not want to be a NON anything... LOL... I was a NON injured person for 60 years... Now everyone knows when I say OBPI how I was injured.
I feel no matter what age you are or how you get the injury loosing a limb is traumatic and for you guys who remember loosing the use of your arms (even the little tbpi's) is very traumatic.
But Courtney knows this and of course UBPN does not want to disregard TBPI either.
As with all new things we are working out the kinks.
Kath
Kath robpi/adult
Kathleen Mallozzi
Kathleen Mallozzi
Re: TBPI POLL PLEASE
We will change the designation of non obstetric to traumatic, hopefully this weekend. Steve Ferguson is working on recoding the program.
Thanks for all your input.
Nancy
Thanks for all your input.
Nancy
Re: TBPI POLL PLEASE
Nancy,
Maybe something else worth mentioning for the individual entries anyway; would it be possible to have a even wider choice of categories to choose from when registering?
It could be split into more choices such as 'OBPI' 'TBPI' and possibly 'parent(s) of injured' also. Otherwise, it looks like your registration process is not allowing for parents to register either.
There could also be another category added to maybe differentiate between parents of OBPI and those of TBPI since there are quite a few parents of both types of injury posting here now.
We have a registration set-up similar to this on the TBPI Group website and it has worked very well for us, although it isn't strictly the same...our one is not open to view to all, just there for registering an interest in getting newsletters from us.
Lizzy B
Maybe something else worth mentioning for the individual entries anyway; would it be possible to have a even wider choice of categories to choose from when registering?
It could be split into more choices such as 'OBPI' 'TBPI' and possibly 'parent(s) of injured' also. Otherwise, it looks like your registration process is not allowing for parents to register either.
There could also be another category added to maybe differentiate between parents of OBPI and those of TBPI since there are quite a few parents of both types of injury posting here now.
We have a registration set-up similar to this on the TBPI Group website and it has worked very well for us, although it isn't strictly the same...our one is not open to view to all, just there for registering an interest in getting newsletters from us.
Lizzy B