At long last, we have a new Registry on this site.
The Registries were designed for the following reasons:
About our Registry
The UBPN Registries are designed to assist brachial plexus injured individuals and professionals to find each other. It will be of great benefit for support groups to bring together people in their geographic area. It will also help individuals with easy access to contact information.
All information entered will be used by UBPN for various purposes including compiling the demographic statistics that are needed to pursue grant funding. You can choose whether you would like your information to be available on our website for the public to see. During registration you will be asked to fill in a username and password. This username and password will allow you to return later to update your information or change whatever information you'd like the public to see from our website.
Please Register at:
http://ubpn.org/Registry/
Our thanks go to Ryan McClune and Steve Ferguson who have labored long and hard to make this an actuality.
There is also a link from the home page.
Nancy Birk
UBPN President
UBPN Registry
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: UBPN Registry
THANKS Ryan and Steve!!! Great job! Very easy for this "senior" newbie computer user to use!!
Carolyn J
Carolyn J
Carolyn J
Adult LOBPI
Adult LOBPI
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Karen McClune
- Posts: 746
- Joined: Wed Sep 10, 2003 4:58 pm