I HAVE BPI HAVE A QUESTION
I HAVE BPI HAVE A QUESTION
I have BPI since birth now I'm 26 yrs old. I do experience slight pain at times in the wrist. I can move my arm about 30 percent now. When I get older will I start to feel more pain in my arm and have less movement?
Re: I HAVE BPI HAVE A QUESTION
Hi Ratz!
I'm 50 & have had ROBPI since birth. I was about your age when I started having tendonitis in my right wrist and fingers. I never really "babied" my hand & was able to put up with the discomfort. As I got older, however, the pain seemed to last longer & get stronger. I continued to use my hand as normally as I could, thinking that if I kept using it, I would strengthen it.
I know that everybody's injury is a little different. My biggest problem now is that my left arm & hand is suffering from "over-use". I also have more pain in my right shoulder & lower back.
My best advice is to keep using your OBPI hand as much as you can. You will strengthen the injured hand & save your good hand from "over-use". Most of us "Erbys" have a pretty high tolerance for pain.
I don't know if this really helps. I'm sure that there are many others on the board who will also share their personal experiences.
Good Luck to you. Stay positive!
Cyndi
I'm 50 & have had ROBPI since birth. I was about your age when I started having tendonitis in my right wrist and fingers. I never really "babied" my hand & was able to put up with the discomfort. As I got older, however, the pain seemed to last longer & get stronger. I continued to use my hand as normally as I could, thinking that if I kept using it, I would strengthen it.
I know that everybody's injury is a little different. My biggest problem now is that my left arm & hand is suffering from "over-use". I also have more pain in my right shoulder & lower back.
My best advice is to keep using your OBPI hand as much as you can. You will strengthen the injured hand & save your good hand from "over-use". Most of us "Erbys" have a pretty high tolerance for pain.
I don't know if this really helps. I'm sure that there are many others on the board who will also share their personal experiences.
Good Luck to you. Stay positive!
Cyndi
Re: I HAVE BPI HAVE A QUESTION
Rahz:
I am 65 and have a ROBPI. I have good use of my hand and wrist but limited use of my arm and shoulder. I have been relatively pain free over the years and have maintained about the same range of movement (I can raise my right arm to about head level). However, I have recently noticed a moderate decline in strength and some soreness in the affected shoulder especially if I have been actively using my right arm. I am currently getting some PT help with the objective of maintaining strength level.
I agree with Cyndi. Try to keep using your BPI arm as best you can. Also, if you can, see a BPI medical professional on a regular basis. It seems like the medical profession tends to help BPI's achieve the best recovery possible in the growing years and then turn us loose. I think BPI's would benefit from long term advice and care as adults also.
John P.
I am 65 and have a ROBPI. I have good use of my hand and wrist but limited use of my arm and shoulder. I have been relatively pain free over the years and have maintained about the same range of movement (I can raise my right arm to about head level). However, I have recently noticed a moderate decline in strength and some soreness in the affected shoulder especially if I have been actively using my right arm. I am currently getting some PT help with the objective of maintaining strength level.
I agree with Cyndi. Try to keep using your BPI arm as best you can. Also, if you can, see a BPI medical professional on a regular basis. It seems like the medical profession tends to help BPI's achieve the best recovery possible in the growing years and then turn us loose. I think BPI's would benefit from long term advice and care as adults also.
John P.