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Kath
boston
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Kath
- Posts: 3242
- Joined: Mon Nov 18, 2002 4:11 pm
- Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
- Location: New York
Re: boston
Kath robpi/adult
Kathleen Mallozzi
Kathleen Mallozzi
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admin
- Site Admin
- Posts: 19873
- Joined: Mon Nov 16, 2009 9:59 pm
Re: boston
Julie , i think that would be great
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admin
- Site Admin
- Posts: 19873
- Joined: Mon Nov 16, 2009 9:59 pm
Re: boston
Doctor Waters is out of bostons children hosp..He's WONDERFUL
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BrokenWingedAngel85
- Posts: 56
- Joined: Tue Apr 26, 2005 2:51 pm
Re: boston
Great, thanks for the info. Maybe we can get together sometime. I'd like to start a BPI group in MA, because I honestly haven't met many other BPI families through PT sessions, etc.
-Johanna
-Johanna
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admin
- Site Admin
- Posts: 19873
- Joined: Mon Nov 16, 2009 9:59 pm
Re: boston
Yes that would be great to meet you all. Especially if we live close together.
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admin
- Site Admin
- Posts: 19873
- Joined: Mon Nov 16, 2009 9:59 pm
Re: boston
When you are in Boston, go to your appointment, take notes, make a list of your concerns and worries. Then make a decision that those matters need to wait until another time, and then forget about it! Go and explore Boston! Go to Harvard Square, go to Little Italy, go to the endless hallway at MIT, go to the Aquarium, go to the Open Markets. Go and discover the History of Our Country. GO HAVE SOME FUN!
I have friends that have children of birth injury far worse than BPI. They are happy people because they drawn a clear line between medical and educational issues and their desire to just enjoy themselves as adults and WITH their kids. GO HAVE SOME FUN!
I have friends that have children of birth injury far worse than BPI. They are happy people because they drawn a clear line between medical and educational issues and their desire to just enjoy themselves as adults and WITH their kids. GO HAVE SOME FUN!
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BrokenWingedAngel85
- Posts: 56
- Joined: Tue Apr 26, 2005 2:51 pm
Re: boston
LOL yeah I have to agree with you on that. Sometimes the best treatment is just to forget about what you're treating, just relax and have fun. And Boston's a great city; for those of you who've never been here, you HAVE to do the aquarium, and if possible, visit Fenway =)
Re: boston
I live in Amherst MA about two hours from Boston and i've seen Dr. Waters for two surgeries. i'm 17 but i'd love to meet other BPI families, maybe answer questions parents might have!
-Sierra
-Sierra
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admin
- Site Admin
- Posts: 19873
- Joined: Mon Nov 16, 2009 9:59 pm
Re: boston
Sierra ,how old were you when you started seeing doctor waters..