Thanks to all

[admin]

I just wanted to say thank you to everyone who has been on this website and willing to talk about all the trials and triumphs of having bpi. My 14 year old daughter had a complete brachial plexus avulsion injury in January and we are still learning more about her injury. She had surgery in March at the Mayo Clinic and they were able to attach nerves to her shoulder and bicep. They were not able to give her anything below the elbow or fix the phrenic nerve to her diaphragm. She is receiving physical, occupational, speech and vision therapy 3 times a week 45 minutes each session. We have recently discovered that there is nobody in Alaska with her injury (unless they do not receive any rehab) I am hoping that there is somebody about my daughter's age (or not) with this injury that would be willing to talk to her about what they have learned or discovered how to do with only one functional arm and also how to deal with the dangling, heavy arm. She has a hard time reading with her horners syndrome and the brain injury so she does not get on this website and read any of the encouraging things that I see. Thank you.

[babyryd]

Hi Rene, It's so good to hear from you. I emailed you a while back, but never heard back - I'm learning just how consuming this injury can be (especially initially). I've been thinking about you all and wondering how things went with your daughter's surgery. My husband and I have spent endless hours researching and learning about TBPI and we're still trying to decide on where to go for surgery (Mayo or Johns Hopkins). Anyhow, this forum has brought us so much comfort and encouragement from people like yourself. Thank you to you also!
Lourdes

[Karen McClune]

Hi Rene,

I was about to write you to see how your daughter was doing, Then I saw your post here.

After Ryans accident I didn't find anyone either that had a BPI. I was glad to be working in a clinic when we lived there and the drs. were able to explain what Ryan had etc.

As always my very best to you and your family.

Keep us posted on her progress.

Hugs, Karen