Hello, all. It's been quite a while since I've "been here." Anyway, I'm looking for some insight. I posted this on the general board, but thought it'd be helpful to post her as well. Thank you in advance.
Okay, here's a new one (new for me anyway). I keep learning more about this injury as Nicole gets older and communicates better. Today I was doing Nicole's hair, which is a long and difficult process (she's bi-racial and was blessed with hair more like her Dad's). Anyway, at one point when I was doing a braid, it hurt her and when she said ow, she grabbed her left (BP) arm. So, I asked her why she grabbed her arm when she said ow. She told me that it hurts her arm too when she gets startled like that. I was pretty shocked b/c not only did I never know that, but I don't even understand. Anyone else ever experience this? Thanks.
~Tina, Mom to Nicole (6 y.o. w/LBPI) & Joshua (1 y.o. c/s)
Arm Pain When Startled
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Kath
- Posts: 3242
- Joined: Mon Nov 18, 2002 4:11 pm
- Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
- Location: New York
Re: Arm Pain When Startled
Tina
I did not see the post here but answered you on the General Message Board. But here is a little more info.
At the Pain Clinic last year Dr.Belzberg explained the reason I get a pain message and annoyed when someone just touches my arm is due to a scrambled message. Gentle touch sometimes registers Ouch! your hurting me... it was funny because Ralph and I have argued because he touchs my arm to talk and I say Ouch... he of course says I hardly touch you... my brain says he hurt me... Thanks to Dr. B this is no longer a problem because he understands now.... And finally so do I.
I think I startled more due to sensory issues. Just my opinion but we all have little hairs on our body that feel the breeze or presence of someone near us... I have losse of sensitive touch on that side so I guess I don't have the preception of someone next to me... but that is just a guess on my part.
Kath
I did not see the post here but answered you on the General Message Board. But here is a little more info.
At the Pain Clinic last year Dr.Belzberg explained the reason I get a pain message and annoyed when someone just touches my arm is due to a scrambled message. Gentle touch sometimes registers Ouch! your hurting me... it was funny because Ralph and I have argued because he touchs my arm to talk and I say Ouch... he of course says I hardly touch you... my brain says he hurt me... Thanks to Dr. B this is no longer a problem because he understands now.... And finally so do I.
I think I startled more due to sensory issues. Just my opinion but we all have little hairs on our body that feel the breeze or presence of someone near us... I have losse of sensitive touch on that side so I guess I don't have the preception of someone next to me... but that is just a guess on my part.
Kath
Kath robpi/adult
Kathleen Mallozzi
Kathleen Mallozzi
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marieke
- Posts: 1627
- Joined: Fri Apr 01, 2005 6:00 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008. - Location: Montreal, Qc, Canada
- Contact:
Re: Arm Pain When Startled
I used to get that too, now I get a "weird" feeling (hard to describe) when I get nervous/anxious in my left arm (the affected one). It is strange but she is not alone.
Hope this helps!
Hope this helps!
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CarolynfromLA
- Posts: 7
- Joined: Mon Apr 04, 2005 8:15 pm
Re: Arm Pain When Startled
Yes! I get that too! When I'm driving, if I have to slam on the brakes or something like that, I get a sharp pain up my OPBI arm. I always thought it was because, in a crisis, my brain sends the signal to my arms to take action, but in my bad arm it comes out as pain.
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admin
- Site Admin
- Posts: 19873
- Joined: Mon Nov 16, 2009 9:59 pm
Re: Arm Pain When Startled
Me too!! Pat
Re: Arm Pain When Startled
Thank you all for your input. It is very interesting to learn more about this. It's hard not being able to feel what Nicole feels and trying to figure it all out as I go. ~Tina
Re: Arm Pain When Startled
Tina, I just had a flash back and thought I'd share! When Brittney was very little I remember us sitting on the floor and talking and I told her that SHE was the one with the arm injury and she knew more than I did about what it felt like to have an injury - and that she'd have to help ME to understand so that I could help her. It was before I found these message boards and I thought we were the only ones out there dealing with this injury. We had a heart to heart - she must have been between 2 and 3 years old. I asked her to please explain everything to me - every pain, every feeling, because I was clueless - she was my first born - and I just didn't know what was normal- what wasn't normal, what might hurt - and I think that after that talk she did help me to understand better what her feelings about things were because she knew that I needed her to help me - to help her!
Anyway - just thought I'd share - just a flash back of that day with us sitting on the floor and talking.
Christy
Anyway - just thought I'd share - just a flash back of that day with us sitting on the floor and talking.
Christy