out of curiousity

[Danzia]

i was wondering how many of you have rsd as a result of your bpi? and how it came to be diagnosed?

thanks
gillian

[EllenB]

What is rsd?

Ellen

[Danzia]

rsd = reflex sympathetic distrophy
it can also be called complex regional pain syndrome

www.rsds.org

www.rsdhope.org

[admin]

BE CAREFUL!!! I rcvd my TBPI on 03/19/04 and within a few months I had started web surfing and came across this huge article from a reputable source that described RSD. It scared the living daylights out of me. I had all the symptoms and thought that I would just jump in front of the next bus and end it all. After talking to my doctor he told me to relax and stop believing everything you read (or read INTO). I asked him how he could be so sure I don't have it. He was honest with me and said he could'nt rule it out yet, but not to get so nervous yet. I was 3 months from the accident at that time. I'm 9 months out now and was assured by 2 doctors recently that by now it would have manifested itself. They both said RSD would have increased my pain so much that I would want to go to the ER everyday. Not that I don't feel like that some days, but the pain has not become worse. Has yours? How long ago was your accident?

[Danzia]

i had never heard of it until a doctor mentioned it to explain my pain and muscle atrophy and lack of circulation. ive been undergoing pain management and physio for the last four months.

my accident happened almost five years ago, in the last year, my pain has 100x itself from the worst it ever was, and i have lost most of my function that i previously had. i have not yet been officially diagnosed with it yet, but several doctors believe it to be the only reason that could explain my condition. and not much seems to help me either.

it was more out of curiousity that i was asking to see if many bpi patients also have it. thanks for your concern though