New Roll Call

Forum for parents of injured who are seeking information from other parents or people living with the injury. All welcome
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emmetts mom
Posts: 13
Joined: Sun Aug 01, 2004 5:12 pm

Re: New Roll Call

Post by emmetts mom »

I am Georgina, I have 4 kids:Elijah 10,Blaine 6, Avery 3, Emmett 7 months ROBPI
admin
Site Admin
Posts: 19873
Joined: Mon Nov 16, 2009 9:59 pm

Re: New Roll Call

Post by admin »

Hi everyone. My name is Christine and my husband is Vincent. We live in New Jersey. We are proud parents to three wonderful boys. Justin 8 (ROBPI), Madison 6 and Spencer 4. Justin has had Biceps Tendon Lengthening, Pec Release, Caps and Osteotomy. He is doing wonderfully. He had his procedures done at TCH with Dr. Nath. We are extremely pleased with his results. He is extremely high functioning and I am very proud to say he is a first degree blackbelt. You heard me right! He has been studying for five years after he aged out of therapy and it was the best thing we could have done for him mentally and physically. Happy Holidays to you all. God Bless!
Logan'sMom
Posts: 13
Joined: Wed Dec 08, 2004 10:45 am

Re: New Roll Call

Post by Logan'sMom »

Hi! I'm Crystal and I have two children, Sydney (2 1/2 yrs) and Logan (12 wks, ROBPI). We live in Nebraska and see an Orthopaedic Surgeon and an OT, but no BPI specialist so far. My son recovered biceps movement around 2 months, so for now we're doing ROM daily and following up with the doctor and OT monthly. I'd like to make sure I'm doing everything I can to help my son, so it's wonderful to hear from other people who have been through this. Happy Holidays to everyone!

Crystal
Savannahsmom
Posts: 168
Joined: Sat Mar 02, 2002 1:16 pm

Re: New Roll Call

Post by Savannahsmom »

Hi! I am Heather. Mom to Hailey(5yr.), Savannah (3 yrs. old with ROBPI), and Trey (1 1/2). We live in North Georgia. Savannah weighed 11lbs. 3 oz. at birth and has had primary surgery and Mod Quad surgeries. Happy Holidays everyone!!!!
Argentina
Posts: 12
Joined: Tue Dec 14, 2004 12:24 pm
Injury Description, Date, extent, surgical intervention etc: My son Franco (now 17) suffers from left OBPI. He has undergone 3 operations already and though his recovery has been quite good, the injury still shows itself.
I have a support group in my country called Paralisis Braquial Obstetrica -PBO Argentina. You can find us in Facebook.
At the moment I´m really working hard to pass a law to guarantee parents are informed of this injury when the babies are born. Unfortunately in my country we are not informed about these injuries.
Location: Buenos Aires, Argentina

Re: New Roll Call

Post by Argentina »

Hi, I´m Patricia mother to Franco (OBPI). He´s 12 years old and we live in Argentina. I´m so happy I could find you! I´ll be very grateful if you could send me information about places here in Argentina to deal with the injury. Difficult, no ? Thanks all the same.
Christina
Posts: 10
Joined: Fri Dec 24, 2004 10:39 pm

Re: New Roll Call

Post by Christina »

Christina here, two month old daughter, Ambrosia, with robpi (is that how you say it?) I also have a two year old, Naliyah (pronounced Nuh-lee-yuh) and a wonderful husband, Robert.
admin
Site Admin
Posts: 19873
Joined: Mon Nov 16, 2009 9:59 pm

Re: New Roll Call

Post by admin »

Hi I am mom to Scott who has LOBPI he is 14 months old We live in Maryland
Thanks to all who share their story, it really helps to have support
tcon
Posts: 174
Joined: Fri Feb 21, 2003 6:11 pm

Re: New Roll Call

Post by tcon »

Hi, I'm Terri, wife of Chris and mother of 2 daughters, Kearney (26 month, LOBPI..9lb13oz), and Quinn (12months c-section but 9lb 7oz 3Weeks early). Kearney is surgery free so far. Great recovery, but we're more focused on issues secondary to BPI right now (weak trunk, scoliosis etc).
Terris5
Posts: 14
Joined: Mon Mar 15, 2004 3:14 pm

Re: New Roll Call

Post by Terris5 »

Hi My name is Terri my husband is Bob. We live in northwest Indiana with our 5 children Bobby 13,Shelby 10, Becca jo 6, Sara 4 and Jamie 15 months --she was born weighing in at 10lbs 13.5 oz with lobpi and right broken clavical! She is surgery free and recovering very well.
admin
Site Admin
Posts: 19873
Joined: Mon Nov 16, 2009 9:59 pm

Re: New Roll Call

Post by admin »

Hi, my name is Tammy. My husband Michael and I have two sons, Brent who is 15, and Blake (ROBPI) who is 11. We live in Union City, TN.
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