Dr. Waters or Kozin

Forum for parents of injured who are seeking information from other parents or people living with the injury. All welcome
admin
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Dr. Waters or Kozin

Post by admin »

Does anyone know if either of these doctors have a website? Especially one that explains each of the surgeries they may perform.
admin
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Re: Dr. Waters or Kozin

Post by admin »

Your best bet is to speak with them directly. I do not believe they are big on websites. There are probably parents here who could answer questions to some degree, but going directly to the source is always the best route when trying to inform yourself.
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Tanya in NY
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Injury Description, Date, extent, surgical intervention etc: I am Mom to Amber, injured at birth. I serve on the Board of Directors for UBPN, and am a labor/delivery nurse, too.
Location: NY State
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Re: Dr. Waters or Kozin

Post by Tanya in NY »

Here is direct contact information to talk with each of them.

Dr. Kozin--Main Hospital #: 1-800-281-4050
Nurse, Linda Filipone #: 215-430-4074
Dr. Kozin's #: 215-430-4034
Email address: skozin@shrinenet.org


Dr. Waters--Nurse, Paula Donahue #: 617-355-6021
Email address: Peter.Waters@Childrens.harvard.edu


This is the contact information that I use to speak with them. Good luck.

Tanya in NY
Tanya in NY
Amber's Mom, ROBPI, 13 years old
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Brenda333
Posts: 217
Joined: Mon Nov 18, 2002 6:59 pm
Injury Description, Date, extent, surgical intervention etc: Daughter has global palsy (c5-T1 injury) 5 surgeries at Texas Children's by Dr
Laurent, Shenaq, and Nath. 1st Surel graft 2nd Intercostal transfer 3rd Latisimus Dorsi transfer with subscapular release 4th Pec release 5th Bicep lenghtening, (which weakened her bicep, and contracture returned.) Has went through serial casting with fair results. Her arm is about a hand shorter then the other. She has limited hand function. (able to grasp) Arm stays pronated. Unable to get to neutral. Now dealing with sternoclavicular subluxation. All that being said....She is very functional. She is a very determined, strong, tenacious young woman. Now 15. She plays the trumpet, french horn, drums, guitar, and now learning piano. Has always played on a softball, and basketball team. Until recently, for fear of further injury due to the sternoclavicular subluxation. (separation of colarbone from sternum) Not sure if all this is spelled right.
--
Location: Wisconsin
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Re: Dr. Waters or Kozin

Post by Brenda333 »

Dr. Kozin wrote an article for the National Brachial Plexus/Erb's Palsy Asssociation, Inc.,

http://www.nbpepa.org/ShrinersKozin.htm
Brenda
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Brenda333
Posts: 217
Joined: Mon Nov 18, 2002 6:59 pm
Injury Description, Date, extent, surgical intervention etc: Daughter has global palsy (c5-T1 injury) 5 surgeries at Texas Children's by Dr
Laurent, Shenaq, and Nath. 1st Surel graft 2nd Intercostal transfer 3rd Latisimus Dorsi transfer with subscapular release 4th Pec release 5th Bicep lenghtening, (which weakened her bicep, and contracture returned.) Has went through serial casting with fair results. Her arm is about a hand shorter then the other. She has limited hand function. (able to grasp) Arm stays pronated. Unable to get to neutral. Now dealing with sternoclavicular subluxation. All that being said....She is very functional. She is a very determined, strong, tenacious young woman. Now 15. She plays the trumpet, french horn, drums, guitar, and now learning piano. Has always played on a softball, and basketball team. Until recently, for fear of further injury due to the sternoclavicular subluxation. (separation of colarbone from sternum) Not sure if all this is spelled right.
--
Location: Wisconsin
Contact:

Re: Dr. Waters or Kozin

Post by Brenda333 »

Brenda
BPI Connection
http://www.freewebs.com/wbpic
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Brenda333
Posts: 217
Joined: Mon Nov 18, 2002 6:59 pm
Injury Description, Date, extent, surgical intervention etc: Daughter has global palsy (c5-T1 injury) 5 surgeries at Texas Children's by Dr
Laurent, Shenaq, and Nath. 1st Surel graft 2nd Intercostal transfer 3rd Latisimus Dorsi transfer with subscapular release 4th Pec release 5th Bicep lenghtening, (which weakened her bicep, and contracture returned.) Has went through serial casting with fair results. Her arm is about a hand shorter then the other. She has limited hand function. (able to grasp) Arm stays pronated. Unable to get to neutral. Now dealing with sternoclavicular subluxation. All that being said....She is very functional. She is a very determined, strong, tenacious young woman. Now 15. She plays the trumpet, french horn, drums, guitar, and now learning piano. Has always played on a softball, and basketball team. Until recently, for fear of further injury due to the sternoclavicular subluxation. (separation of colarbone from sternum) Not sure if all this is spelled right.
--
Location: Wisconsin
Contact:

Re: Dr. Waters or Kozin

Post by Brenda333 »

Sorry NBPEPA used the article from Shriner's Hospital for Children, Philadelphia Connections Newsletter Spring 2001

My mistake,
Brenda
Brenda
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Brenda333
Posts: 217
Joined: Mon Nov 18, 2002 6:59 pm
Injury Description, Date, extent, surgical intervention etc: Daughter has global palsy (c5-T1 injury) 5 surgeries at Texas Children's by Dr
Laurent, Shenaq, and Nath. 1st Surel graft 2nd Intercostal transfer 3rd Latisimus Dorsi transfer with subscapular release 4th Pec release 5th Bicep lenghtening, (which weakened her bicep, and contracture returned.) Has went through serial casting with fair results. Her arm is about a hand shorter then the other. She has limited hand function. (able to grasp) Arm stays pronated. Unable to get to neutral. Now dealing with sternoclavicular subluxation. All that being said....She is very functional. She is a very determined, strong, tenacious young woman. Now 15. She plays the trumpet, french horn, drums, guitar, and now learning piano. Has always played on a softball, and basketball team. Until recently, for fear of further injury due to the sternoclavicular subluxation. (separation of colarbone from sternum) Not sure if all this is spelled right.
--
Location: Wisconsin
Contact:

Re: Dr. Waters or Kozin

Post by Brenda333 »

Brenda
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Ashleigh's Mom
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Re: Dr. Waters or Kozin

Post by Ashleigh's Mom »

I do not know the other doctor you are asking about but my daughter sees Dr. Waters and we love him. He is very competent, compassionate and thorough. I've never felt there was a question I couldn't ask, or rushed during his session. He will be performing primary surgery on our daughter on the 29th. I completely trust him and his ability. Hopefully someone can let you know whether or not they recommend the other doctor you are asking about. Remember this is only my opinion, but I know I felt better after getting referals from other moms who see Dr. Waters. Thanks.
phaliscak
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Re: Dr. Waters or Kozin

Post by phaliscak »

Dear Ashleigh's mom,

How is Ashleigh doing? My son Michael had surgery with Dr. Waters the day before Ashleigh on the 28th. Did you get stuck in the city for the World Series parade? We took off the day Michael was discharged because we didn't want to get stuck there with 3 million expected people for the parade. Fenway Park is only 4 blocks away from the hospital. Michael is doing well with his spica cast. He is actually driving me nuts! I guess that's a good thing. We are heading back to Boston the 5th, settling in to our hotel room and then the cast comes off the 6th at 2:00 PM followed by PT and OT at 3:30. When do you go back? Hope things are moving right along with you and Ashleigh.

Patty Haliscak
Ashleigh's Mom
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Joined: Wed Jul 21, 2004 7:54 pm

Re: Dr. Waters or Kozin

Post by Ashleigh's Mom »

Hi Patty,

Ashleigh's surgery is Nov 29th (in 3 days) so we haven't yet had it. We are anxious (as you can imagine) but know it is the right decision. How did surgery go for your son? Was he in a lot of pain? I'm glad to hear he's doing well with the cast and all. Please keep me appraised of how he is doing once the cast comes off also. Good luck at the hospital in Dec. I wish you the best!
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