New Roll Call

[njacoby499]

Hello everyone!!! My name is Natalie. My son's name is Nicholas age 2 and he has LOBPI.

[njacoby499]

This is Natalie again and I am from Unicoi, TN.

[admin]

Natalie!!! Hi!!! We are OH SO CLOSE!!! I would love to chat with you. If youd like to e-mail me....softballmom09@hotmail.com

[Barbara]

Hi, I am Barbara and my granddaughter Grace is 2 1/2 yrs old with LOBPI. We're in Tennessee too! We live in Oak Ridge just 20 miles from Knoxville. It would be interesting to hear from you, Natalie. My e-mail address is bgritzner@comcast.net.

[admin]

Hi, I'm Mary my daughter Gabby going on 13 in Jan. has lobp. She had the Mod Quad in June 2003 in TCH and is doing wonderful. I thank all of you from the bottom of my heart. I wish I would have found you in the early years. God Bless you and a Wonderful Thanksgiving to you and all your children. I'm from NYC.

[admin]

Hi - My name is Laura, mom to Addyson (4.5yr LOBPI) and Bryson (1yr). My husband Aaron and I live in Arlington. Mod Quad in 2001 and considering the "triangle tilt" surgery in March 2005.

[admin]

Hi I just saw your e-mail and wondered how you know all that stuff about which nerves are involved etc? We just got our 14 wk old diagnosed yesterday. He does have some use after a scary period right after birth but the peds have been focussing on other issues until now. We have a hand OT appt soon and a workup by a rehab orthopedist, what else should we be doing?

Melissa

[admin]

Bump up Please?

[Avery's Mom]

Hi. My name is Bonnie. Mom to Alison (6.5) and Avery (2.5, ROBPI) and new baby in Jan/Feb (girl too).

Avery will be having tendon transfer surgery in January.

We're in geographically-central Canada.

[admin]

Still some newbies. Hoping everyone will post.