Which specialist should our baby see???

Forum for parents of injured who are seeking information from other parents or people living with the injury. All welcome
Locked
famw3kidz
Posts: 7
Joined: Mon Oct 11, 2004 4:09 pm

Which specialist should our baby see???

Post by famw3kidz »

I was wondering what specialist should our 2mth old daughter be seeing??

Physical Therapist
Neurologist
Neurosurgeon
Pediatric Neurologist
Orthopedist

?????? I Just dont know who??????

Thanks
tylergsmom
Posts: 282
Joined: Thu Jan 29, 2004 6:56 pm
Injury Description, Date, extent, surgical intervention etc: Hi! I am Laura, the mom of Tyler, who has a ROBPI. I've been a member of this site since 1998 and owe a great deal to the wonderful people in the UBPN community who have helped us along the way get what we needed to get done for Tyler. Tyler is now 14 years old and in the 9th grade. He's a super bright kid and loves his video games. Tyler had the mod quad surgery with Dr. Shenaq shortly before he passed. That was his first and only surgery. Now that he is older he is requesting additional surgery. He'd like to be able to supinate. Our goal is for Summer 2013.
Location: Gulf Breeze, FL

Re: Which specialist should our baby see???

Post by tylergsmom »

Well, my son saw most of those you listed. He saw a Pediatric Neurosurgeon when he was 4 months old and then again at 6 months and 5 years old. He saw a Neurologist at about 8 months of age. He's been seeing an Occupational and Physical Therapist since he was about 6 weeks old. What happens is you go and see your regular peditrician and then they refer to a specialists and then that specialist may refer you to another one. My son now, at age 6 see his OT & PT on a two times a week basis and his neurosurgeon on a 2 times a year basis. I'm sure your prbably going to get serveral difference opinions on who you should be seeing, but I say whoever you are most comfortable with and who seems to have the most knowledge about it.

Good Luck!
~Laura
Laura LeNoir, Mom of Tyler, Age 14, ROBPI
katep
Posts: 1240
Joined: Mon Mar 29, 2004 3:20 pm

Re: Which specialist should our baby see???

Post by katep »

If your 2 month old still has signs of injury, I would encourage you to see a BPI surgeon who does primary nerve reconstruction surgery. We discovered at nearly 3 months old that the "specialist" we had been seeing was completely uninformed about primary surgery and didn't "believe in it" and it completely freaked us out!

Luckily he was still young and we still had time to get appropriate opinions. Hopefully your daughter will recover without surgery, but it is hard to trust a recommendation against surgery unless it comes from someone who knows all the ins and outs of the particular surgery and can make a real educated guess as to whether or not she would benefit.

Kate
admin
Site Admin
Posts: 19873
Joined: Mon Nov 16, 2009 9:59 pm

Re: Which specialist should our baby see???

Post by admin »

A BPI specialist is who you should see. Some are plastic surgeons, some are orthos, some are called hand surgeons-it doesn't matter as long as their specialty is BPI in kids. There are a lot of them listed in the medical resources part of this site accessible from the Hone page. BPI is a long term thing whether your baby needs surgery or not, try and find one you cn easily travel to for regular check ups and who can help you make long term decisions based on their own experience over years.
m&mmom
Posts: 1395
Joined: Sun Nov 04, 2001 9:34 am

Re: Which specialist should our baby see???

Post by m&mmom »

Matthew has seen a neurosurgeon, has seen and continues to see a physical therapist, occupational therapist, pediatric neurologist, orthopedist. The neurologist, and surgeons are bpi specialists.

He has also seen and continues to see an acupuncturist, reflexologist, chiropractor, reiki practitioner.


Cindy
admin
Site Admin
Posts: 19873
Joined: Mon Nov 16, 2009 9:59 pm

Re: Which specialist should our baby see???

Post by admin »

We have seen all and will continue to. Different orientations and varying opinions make some of us appreciate the importance of getting various opinions, at least during surgical decision making time.3
Locked