Eye Palsy

This board is for adults and teens to discuss issues relating to BPI since birth (OBPI).
Judy-T
Posts: 557
Joined: Fri Nov 02, 2001 11:59 am
Injury Description, Date, extent, surgical intervention etc: Right arm OBPI One surgery at age 40 Ulnar nerve retransposition
Location: Florida

Re: Eye Palsy

Post by Judy-T »

I have worn glasses since the third grade. I have not had any problems until about 4 years ago,when they found a change of pigment behind my eye. Kath is this what you are calling the beauty mark?? I had to go to a retinal specialist .They believe it was just a change in pigment. Scared the hell out of me before that because they were talking cancer. I went to my primary doc yesterday. I have been noticing that I have been loosing feeling in my bpi thumb and pointer finger.I thought I better get it checked after the onion incident. Bloody onions!!! I am going in march to a specialist here to have it checked out.
Kathleen
Posts: 1012
Joined: Sat Nov 03, 2001 5:33 pm

Re: Eye Palsy

Post by Kathleen »

Nancy
You are right when you say “no consistency, lazy eye, nearsightedness, and farsightedness. Obviously it needs careful study" Because each injury is different but some of these thing bear investigation.

I also got trifocals at about the same age. I had to give up on them because of the blur and the fact that I got dizzy and could not focus with them on. I really tried for a few years. I was told I was farsighted way beyond my years in my 30's, each time I got glasses they had to be adjusted and adjusted and were never what the doctor thought they should be. The doctor said my eyes would settle too. But each time my eyes change it is really a mess for him and me... until we find what works for BOTH eyes. When he checks each eye out individually he comes out with one script... then when we try to get the eyes to work together... we need a different one. A few times I thought it was just the carelessness of the eye doctor till this became the norm for me and getting glasses. I just cannot get it right the first time. So I think this bears more study because it may and may not be connected just strange that some seem to have the same problem. I seem to be the only one who had so much trouble getting glasses. Also I would leave out words when copying from blackboard to the point where I was taught to count the words in each sentence to help over come this yet when I had my eyes checked until my 30's I was always 20/20... interesting. And something to look into.

The following paragraph raised a red flag for me while reading it.
"Children born with moderate or severe ptosis require treatment in order for proper vision to develop. Failure to treat ptosis can result in amblyopia (diminished vision in one eye) and a lifetime of poor vision. All children with ptosis, even mild cases, should visit their eyecare practitioner every year. The eyes change shape as they grow, and sometimes focusing and visual problems develop."

http://www.allaboutvision.com/condition ... nglids.htm

Jude I don't know if that is what he means by beauty marks... as usual I took it as no big deal... Now you get to specialist for the fingers...
Kath
jennyb
Posts: 1183
Joined: Fri Nov 02, 2001 5:24 pm
Injury Description, Date, extent, surgical intervention etc: January 1980 Yamaha RD200 vs 16 wheeler truck, result, 1 totally paralysed right arm. I was 21, now 54. I had no surgery, I don't regret this. Decided to totally ignore limitations (easily done aged 21) adapted very quickly to one handed life, got married, had 3 kids, worked- the effect of the injury on my life (once the pain stopped being constant) was minimal and now, aged 54, I very rarely even think of it, unless I bash it or it gets cold, then I wish I'd had it amputated :) Except for a steering knob on my car, I have no adaptations to help with life, mainly because I honestly don't think of myself as disabled and the only thing I can't do is peel potatoes, which is definitely a good thing.

Re: Eye Palsy

Post by jennyb »

Here's a web page re c4 I found when researching for adult bpi info....it's pretty clear that c4 at least has some bearing on respiration which explains the colds etc many of us seem to get, it's also clear that this fact is already known to the medical community. http://www.erbspalsy.org/dq20.html It seems as though the info is out there, it just needs someone to tie it all together. These pages are also helpful in discovering what nerve innervates where....and they are VERY accurate, my injury corresponds EXACTLY to these and the pictorial format is a lot easier to understand than all those bluddy latin words :0) btw....i've had bifocals since i was 35.... http://critcare.lhsc.on.ca/edu_briefs/jun2a00.html

http://critcare.lhsc.on.ca/edu_briefs/may19a00.html

http://critcare.lhsc.on.ca/edu_briefs/jun16a00.html
jennyb
Posts: 1183
Joined: Fri Nov 02, 2001 5:24 pm
Injury Description, Date, extent, surgical intervention etc: January 1980 Yamaha RD200 vs 16 wheeler truck, result, 1 totally paralysed right arm. I was 21, now 54. I had no surgery, I don't regret this. Decided to totally ignore limitations (easily done aged 21) adapted very quickly to one handed life, got married, had 3 kids, worked- the effect of the injury on my life (once the pain stopped being constant) was minimal and now, aged 54, I very rarely even think of it, unless I bash it or it gets cold, then I wish I'd had it amputated :) Except for a steering knob on my car, I have no adaptations to help with life, mainly because I honestly don't think of myself as disabled and the only thing I can't do is peel potatoes, which is definitely a good thing.

Re: Eye Palsy

Post by jennyb »

....just found this one in my archives too....it says theres a connection betwen the cervical vertebrae and lymph, sinus, chest..... explains A LOT! It's a chiropractors site, i think sometimes they make connections others don't.
http://www.echiropractic.net/nervechart.htm
User avatar
patpxc
Posts: 315
Joined: Sat Nov 03, 2001 1:06 am
Injury Description, Date, extent, surgical intervention etc: C-5 and C-6. Unable to supinate. Contracture elbow. Wrist bone underdeveloped.
Can raise forearm to mouth level. shoulder is limited in movement. Unable to put arm behind back. Secondary- early arthritis, carpal tunnel, pronator syndrome,scoliosis
Location: Ohio

Re: Eye Palsy

Post by patpxc »

Kath,
Ok, explain Horner's to me. Sisnce I've been staring at my monkey mug in the mirror the last couple of days, I can see the droopy eyelid and slightly off center pupil that the Dr. saw readily. I wear those photogrey bifocals,never paid that much attention until my vision started to double . Sometimes it feels like it is partially obscured, but I can't tell you why. Not exactly hazy or blurry, just not right. I think I'm going to try a neuroopthalmalogist. As far as colds and URI
s, I would guess that my cough is from smoking for 20 years. Although, I have always gotten asthma episodes when I am really stressed to the max. Sometimes middleage stinks! Pat
Sharon
Posts: 77
Joined: Sat Nov 03, 2001 9:29 am

Re: Eye Palsy

Post by Sharon »

OK girls, can I be a fourth blind mouse or should I be the butcher that cuts off your tails.LOL LOL

I'm not sure if the following is a very accurate account or not. I will pull my dr report out later and post it if you want me to. Anyway, I went to the University of Michigan to a neurologist. He happened to be the head of the dept as well as head of the Kellogg Eye Center therre. I had always described my vision problems as "dizzy" "blurred" or "vertigo" and I did describe them to other dr.'s how they acted. Well I always figured vision problems were causesd by my headaches which in turn was prob birth related. Turns out I have like three different things going on. My dizziness which will only last for a couple of minutes and I lose equaliberiam and will see multiple of what ever I happen to be looking at. Then I am wiped out for days and extremely tired. Dr explained this as seizures which is a form of epalipsy.

The one day I went in I had a very bad headache and could not hardly hold my head up. He dicided to give me an eye exam. Extensive exam I might add. My left eye was much worse than my right and a whole lost worse since my last exam. He gave me the script to take to get new glasses. A gut feeling told me to get another eye exam as I was feeling so bad on that day.
If I would have filled the original script I would have had to look through a blurred lens as I could not even make out letters.

So now I only get an eye exam when I feel "normal" lol...lol What's normal???
This dr did a cat scan of the head which showed one lobe of the brain smaller than the other. The eeg did not show anything. And of course not being able to get in a MRI contraption, I did not schedule one.

In my case, at birth, apparently I had a head fracture that healed. Headaches started about age 29. A wise old osteopath I found actually lifted a plate in my head so that the putartiary (sp) was not so smuched and the three "parts" of the head that breathes would not become stuch as in like an earthquadke when the plates overlap one another. He did this by adjustment and manual manipulations.

And of course I now see a sacral cranial therapist which has further helped me.
Here I am rambling again. E mail me if you would like me to pull dr papers out. We also have to remember that the older we become our body cannot compensate as well for being out of alignment which causes all kinds of other problems. What affects one part of our body will also affect other parts as we are connected to all parts in one way or anotoher. So in reality, if the stupid doctors would have given us a normal birth, we would not have a domino effect. Love to all. Sharon

Sharon
Posts: 77
Joined: Sat Nov 03, 2001 9:29 am

Re: Eye Palsy

Post by Sharon »

I forgot to mention that my old osteopath mentioned my left eye being smaller. He noticed this at once. I never did. I knew my eyelid drooped a litle but never knew about the eye. I'm left obpi. Sharon
User avatar
patpxc
Posts: 315
Joined: Sat Nov 03, 2001 1:06 am
Injury Description, Date, extent, surgical intervention etc: C-5 and C-6. Unable to supinate. Contracture elbow. Wrist bone underdeveloped.
Can raise forearm to mouth level. shoulder is limited in movement. Unable to put arm behind back. Secondary- early arthritis, carpal tunnel, pronator syndrome,scoliosis
Location: Ohio

Re: Eye Palsy

Post by patpxc »

When I was in my 20's I had an abusive husband. One who enjoyed kicking me in the head. I'm right BPI . I'm diabetic so it could be retinopathy. I've had the double vision for ,maybe 4 years. Can't remember. I had a brain MRI and there were a few abnormalities noone could explain ,but essentially normal. My copy burned up in the fire. My long term disability lawyer is supposed tp be sending it to me. Just recently, the double vision got worse, along with the other stuff. I clean my glasses nad it still looks like yhey're dirty. I don't get headaches per se, but nausea and loss odf equillibrium. Will let you guys know when I see an eye specialist. Pat
Kathleen
Posts: 1012
Joined: Sat Nov 03, 2001 5:33 pm

Re: Eye Palsy

Post by Kathleen »

Jen

That web sites especially the chiro site are great site... Thanks
Kath
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