What about your living conditions? Are everybody live in good conditions here? Can you get any support for your life from anybody or any institution?
To earn life is not easy especially if you are a disable people like us. I have family and I don't earn much money. I don't have a house so I have to rent. I have lived in flats with stoves. It is not easy to use stoves. You have to empty its bucket, then put coals and woods then carry and burn. I am planning to rent a flat with central heating but they are not cheap. Is there anybody having such problems here? How can you solve such problems?
Thanks
Living conditions
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Re: Living conditions
What does this have to do with BPI?
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- Site Admin
- Posts: 19873
- Joined: Mon Nov 16, 2009 9:59 pm
Re: Living conditions
Hi,
I am sorry about your predicament, and hope that there is a solution in the country you are in. (I'm in Canada). My sister, Erica is the one with the RBPI...life for her has not been easy. When she was going to college and needed medications. She was on student loans at the time, she used all her living allowance on the drugs she needed. Later we found out she could have easily obtained a card from the government that would pay for nearly all her meds. She is unable to hold any sort of job (was actually laid off because her disability prevented her from doing her job). She qualified for AISH (Assured Income for the Severely Handicapped), so that is her income. She was able to purchase a small home (with a bit of land) in the country. Her mortgage payments are small, but her AISH cheques are also small. She is very creative in how she makes ends meet.
I've read on here amazing stories of how BPI adults are able to hold wonderful jobs. Unfortunately not my sister. My sister struggles like you to pay for day to day living. She relies on the government (money), neighbors (support and rides in to town), family, and church (purpose in living).
Find out what government funding is available to you. If you are involved in any religious organizatiopn, there should be some sort of help available that way.
I hope that things start to look brighter for you.
Jillianne
I am sorry about your predicament, and hope that there is a solution in the country you are in. (I'm in Canada). My sister, Erica is the one with the RBPI...life for her has not been easy. When she was going to college and needed medications. She was on student loans at the time, she used all her living allowance on the drugs she needed. Later we found out she could have easily obtained a card from the government that would pay for nearly all her meds. She is unable to hold any sort of job (was actually laid off because her disability prevented her from doing her job). She qualified for AISH (Assured Income for the Severely Handicapped), so that is her income. She was able to purchase a small home (with a bit of land) in the country. Her mortgage payments are small, but her AISH cheques are also small. She is very creative in how she makes ends meet.
I've read on here amazing stories of how BPI adults are able to hold wonderful jobs. Unfortunately not my sister. My sister struggles like you to pay for day to day living. She relies on the government (money), neighbors (support and rides in to town), family, and church (purpose in living).
Find out what government funding is available to you. If you are involved in any religious organizatiopn, there should be some sort of help available that way.
I hope that things start to look brighter for you.
Jillianne
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- Site Admin
- Posts: 19873
- Joined: Mon Nov 16, 2009 9:59 pm
Re: Living conditions
I'm so sorry for your sister Jillianne,
I am happy and thank to God because at least I have a job and regular income even though it is not sufficient. Thanks my God
I am happy and thank to God because at least I have a job and regular income even though it is not sufficient. Thanks my God
Re: Living conditions
Jillianne, I'm so sorry for your sister's situation. In fact I have a job and a regular income (even though it is not sufficient) and I thank to God all the time thinking people in much worse conditions than me.
Thanks
Thanks
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- Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
- Location: New York
Re: Living conditions
Jillianne
Please tell Erica I think of her often and wonder how she is doing. I am glad that she has some help but most of all I am glad she has a loving sister like you who really tries to understand her challenges.
Give her my best and tell her I sent a big bpi hug
(((((((((((((hug>>>>>>>>>>> from Kath robpi.....
Please tell Erica I think of her often and wonder how she is doing. I am glad that she has some help but most of all I am glad she has a loving sister like you who really tries to understand her challenges.
Give her my best and tell her I sent a big bpi hug
(((((((((((((hug>>>>>>>>>>> from Kath robpi.....
Kath robpi/adult
Kathleen Mallozzi
Kathleen Mallozzi