Back from Houston

Forum for parents of injured who are seeking information from other parents or people living with the injury. All welcome
Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

Re: Back from Houston

Post by Kath »

Well, good for him. Us obpi kids are tough...

now I just wish I was a kid again. I love my game boy and Zelda. I think I am the only grandmother around that plays Mario with my grandchildren... LOL...
Kath
Kath robpi/adult

Kathleen Mallozzi
admin
Site Admin
Posts: 19873
Joined: Mon Nov 16, 2009 9:59 pm

Re: Back from Houston

Post by admin »

I am happy to hear from older kids that have been through so much. My son has had 2 surgeries to date and thankfully, we just dodged another one last week. Dr. Shenaq is really happy with the bulk that Ian has in his arm and the things that he is able to do actively. I know we have a long road ahead, I have a feeling when we go to Houston again in 6 months we might not have such great news, but we can still pray! Thank you Josh for being a good kid and sharing your positive attitude with us. My little guy needs big people like you to look up to. By the way... be thankful that those video games are GOOD for your hand, I don't know too many kids that can use therapy as an excuse to play xbox! Keep up the good work!
Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
Contact:

Re: Back from Houston

Post by Carolyn J »

OK JOSH and Kath, I AM really jealous now!! I never could figure out how to do games 1 handed. Josh, you are going to have to show me! Josh, while you were gone to Texas some other teens posted on the Boards but this "senior" can't remember under what topic!! I remember a 20's something posted too so keep surfing the topics on ALL the boards!!
Julia I can't wait to give everyone a hug, you done great!!
Carolyn
Carolyn J
Adult LOBPI
Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

Re: Back from Houston

Post by Kath »

Don't laugh Julia but my husband gave me Game Boy SP as one of my Christmas Gifts last year with Zelda... I love the Zelda games the best... There is another obpi/adult who's name I will not mention who is also addicted to Zelda games... She had problems with her wrists from playing the game too much...lol...lol...
I have the silver, my granddaughter & grandson have blue. I also have an old game nientendo that the kids loves.
Kath
Kath robpi/adult

Kathleen Mallozzi
Son_of_Atenhouse
Posts: 13
Joined: Fri Jun 04, 2004 5:52 pm

Re: Back from Houston

Post by Son_of_Atenhouse »

I have the original GB Advance, which had a terrible screen. I swear, you had to be in direct sunlight to be able to see that darn screen. Also, Zelda rocks, and always has... :D
Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

Re: Back from Houston

Post by Kath »

I have it too! and your right this old granny needed the sunlight to see it... now I let the 3 year olds play it...
Kath
Kath robpi/adult

Kathleen Mallozzi
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