Turning the page...new chapter in life....

Forum for parents of injured who are seeking information from other parents or people living with the injury. All welcome
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phaliscak
Posts: 313
Joined: Mon Mar 11, 2002 2:56 pm

Turning the page...new chapter in life....

Post by phaliscak »

We are finally heading to Boston for Michael's July 7th appointment at 10:45. We usually leave here in New Jersey the day before and stay overnight at the hotel right beside the hospital and then take our time going back home. We had our MRI taken and Michael did great. He layed perfectly still through the hole thing and didn't need sedation.

Now that it's been 7 months since he finished his chemotherapy treatment, he needed to catch up with his booster shots. Oh, boy was I glad that was over. 3 shots. 1st one was so so, 2nd went not too well, by the time the 3rd came he had had enough. Michael has his clinic appointment tomorrow to check his body and blood for a relapse of his cancer so please say an extra prayer tonight that he is still healthy. It's been 7 months now since treatment has stopped and I still haven't exhaled yet.

Michael's school has been great. We had his IEP this past April and they are all ready to get Michael what he needs for a successful school year in 2nd grade. We discussed with Dr. Waters and his school about Michael starting school in September and to biuld a relationship with his new teacher and new classmates first. Then at the end of September or early October pull him out for his surgery in Boston. He will have a school teacher come to the house while he has his cast on. While he is home we plan for him to visit his classroom and have his class sign his cast. I know this may sound strange, but I am excited for him. I am also a little scared at the same time. I am hopeing our visit with Dr. Waters will take that fear away and we can all turn the page in his life and begin a new chapter.

Patty

admin
Site Admin
Posts: 19873
Joined: Mon Nov 16, 2009 9:59 pm

Re: Turning the page...new chapter in life....

Post by admin »

Patty:

I wish you the best of luck for everything to work out well! I will keep you all in my thoughts and prayers. Let us know how the appt goes.
Thanks for sharing your update with us. :)

Krista
Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

Re: Turning the page...new chapter in life....

Post by Kath »

Patty
You and Michael are in my prayers for good health and great joy in his new school year.

Thanks for giving us this update please keep us posted.
Prayers for you all,
Kath
Kath robpi/adult

Kathleen Mallozzi
StaceyF
Posts: 56
Joined: Thu Apr 24, 2003 9:48 pm

Re: Turning the page...new chapter in life....

Post by StaceyF »

Wishing you all well, we will be thinking of you. Keep us posted. Stacey
blue_Iz
Posts: 12
Joined: Thu Apr 01, 2004 11:26 pm

Re: Turning the page...new chapter in life....

Post by blue_Iz »

It is not easy for all of us parents to see our children hurt, but we do the best for them. Good Luck.

Cyndi
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