bpi and rsd symptoms
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flowerchild
- Posts: 22
- Joined: Tue Nov 27, 2001 1:27 am
bpi and rsd symptoms
I am wondering how many other people with bpi also have symptoms of RSD or color changes,swelling,hypersensitivity and such of thier hand? I was talking to Jodean at the Neurography Inst.and she said that they have found a conection between adhesions and these symptoms. They have found that when you remove the adhesions in the plexus that often the rsd symptoms go away. Has that been anyones experience? Check out the web sight www.neurography.com for some great bpi stuff. flowerchild
Re: bpi and rsd symptoms
I was tbpi (stretch we think) and the parts of my lower arm and hand furthest away from injury are still most affected sensory wise, numbness in my arm and wrist but TOTAL hyprsensitivity in my hand (palm side, not upper) - it feels every minute detail so strong touching something hard like metal is so strong its like pain you withdraw from it.. HATES cold too, but i keep doing it tho and find it somehow lessens the signal to brain?
Re: bpi and rsd symptoms
What I'M wondering is, how many people who have been diagnosed as having RSD, actually have a brachial plexus injury?
Re: bpi and rsd symptoms
Lizzy,
I was diagnosed the first six months as having RSD. To this day I am so angry about that I would like to make the medical community eat that label! RSD is the medical communities way of getting out of diagnosing injuries!
I think any doctor who uses the label of RSD should have their license taken away permanately! Before anyone jumps on the side of doctors think of this. If they would have diagnosed my arm before six months some of these surgeries everyone writes about could have been an option for me instead I get to spend the rest of my life wondering what if! All because the medical community was too stupid not to mention greedy to admit that they didn't know what was wrong. I was three weeks away from my twenty-seventh birthday at the time of the accident. In a month I will be twenty-nine and every night my children pray to God to make my hand better. In the morning I get to see the look of saddness come over their face as they realize my hand does not work still.
I am sorry I vented so but this is something that makes my blood boil!
I was diagnosed the first six months as having RSD. To this day I am so angry about that I would like to make the medical community eat that label! RSD is the medical communities way of getting out of diagnosing injuries!
I think any doctor who uses the label of RSD should have their license taken away permanately! Before anyone jumps on the side of doctors think of this. If they would have diagnosed my arm before six months some of these surgeries everyone writes about could have been an option for me instead I get to spend the rest of my life wondering what if! All because the medical community was too stupid not to mention greedy to admit that they didn't know what was wrong. I was three weeks away from my twenty-seventh birthday at the time of the accident. In a month I will be twenty-nine and every night my children pray to God to make my hand better. In the morning I get to see the look of saddness come over their face as they realize my hand does not work still.
I am sorry I vented so but this is something that makes my blood boil!
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jennyb
- Posts: 1183
- Joined: Fri Nov 02, 2001 5:24 pm
- Injury Description, Date, extent, surgical intervention etc: January 1980 Yamaha RD200 vs 16 wheeler truck, result, 1 totally paralysed right arm. I was 21, now 54. I had no surgery, I don't regret this. Decided to totally ignore limitations (easily done aged 21) adapted very quickly to one handed life, got married, had 3 kids, worked- the effect of the injury on my life (once the pain stopped being constant) was minimal and now, aged 54, I very rarely even think of it, unless I bash it or it gets cold, then I wish I'd had it amputated :) Except for a steering knob on my car, I have no adaptations to help with life, mainly because I honestly don't think of myself as disabled and the only thing I can't do is peel potatoes, which is definitely a good thing.
Re: bpi and rsd symptoms
mindy, i realise you aren't in a position to sue these incompetent jerks, but is there no system where Drs errors are examined by the hospital? Don't they care that their employees make mistakes? Who has responsibility for patients welfare? There are now several peeps posting here who got a bpi from surgery, a whole general board of parents with kids who got injured by medical professionals and STILL it continues...if you can't sue does the Dr never have to take responsibility? Is the whole system based on nothing but $$$? I sometimes wonder about the huge number of peeps who don't have access to the internet and probably NEVER find out why their arm doesn't work....a patient presents a paralysed arm after a car wreck and it's diagnosed as RSD????? That's INSANE by any standards. To then cover the mistake by messing with your records just confirms, they f****d up and they know it. A bpi is hard enough to deal with, if mine had been caused by a medical professional who wouldn't take responsibility, I'd camp outside his/her house with my kids and a begging bowl. Have you thought of starting a patient's advocacy organisation and start lobbying for change? I realise the 'system' is against you, it's the same everywhere, the UK govt came close to banning bull bars from the front of vehicles following intense lobbying by various groups, (those things are DEATH TRAPS) but it turned out half the committee set up to look into the problem by the govt had shares in the company that made them....guess what? No law change. Money has become the new religion and we pay the price.
Re: bpi and rsd symptoms
Jenny,
Let me first put out this disclaimer THIS IS MY OPINION! In my case the lawyers will not represent me because as thet put it "there is not going to be enough compensation to cover such a complicated case." This is one quote from the slimey..... My auto insurance policy has almost $500,000 left on it and according to the lawyer's rates they will get roughly 50% of that money. If you would like to hear more of these quotes e-mail me I willl send you more. There was one that left me crying and laughing at the same time but there was not room to put it here. I have spent eighteen months fighting to see a specialist but no lawyer that I have spoken with will help. I borrowed a Minneapolis/St. Paul yellow pages and it has got to be over six inches thick. I have called every lawyer in that book and I have the rejection letters to prove it. I called the Minnesota Attorney Generals Office more times than I will admit and they won't even help.
As far as doctors go I know there are TBPI people out there that are not diagnosed and it is because of greed and stupidity. To be blunt I wonder how many are even here anymore. Being diagnosed with RSD is the worst! They scream at you, call you names, and tell you that you are lying. If those "treatment" options don't work then they start in about you needing to see a shrink. I had horner's syndrome the doctors missed! My best friend last night for the first time in two years started talking and how she described me and the car was beyond words... I looked so bad there is only one photo of me in the first year! The idiot physicians didn't even notice my arm was paralyzed from the elbow down! By physicians I mean two family practice physicians, an orthopedic surgeon, and a neurologist all said "the lack of movement is a direct result of the RSD and will correct itself when the RSD is brought under control."(this is a quote from what's left of my medical chart and these doctors only charged a little over $60,000 for this misdiagnosis!)
RSD's name came about in the 1940s when it was created to cover four others. The original four were created as far back as the civil war to describe injuries and pain that made no medical sence at the time. With the advances in technology there should be no label RSD because it simply stands for unexplained pain in the sympathetic nervous system. Causalgia was one of the original four and was used to describe the pain civil war soldiers were having after minor shoulder wounds. Hmmmm doesn't that sound a lot like what we all go through. If you want more info on this please let me know. I have spent eighteen months researching both injuries to the point friends think I should write a book.
Fifteen months after the accident my current OT was the first medical person to exam and document the damage to my arm from the neck down. Everyone else looked at my wrist and fingers only! She is the one who found I have no feeling in my tricep region to name just one of the spots she found that day. She was horrified that no one bothered in fifteen months to examine me. The only exception to all this is the doctor who diagnosed the bpi he was the first and only one to admit this was over his head and saddly he will be the last physician to see my arm. Financially things are really bad around here. In 2001 I made one-sixth of what I made before the wreck so at this point in my life I have to move forward meaning my arm is going to have to wait. Its been two years and I very much doubt any specialist is going to be able to do anything except give me one more huge bill that I cannot afford.
I am sorry I have vented so much in the last two days but it makes me so angry to know that "doctors" are still slapping the label RSD on people for the sake of money. So my advice is if any physician says those three letters leave because they are not a doctor.
I did go to my state capital with my children with the intention of screaming about this injustice but I went to church and prayed when I saw people in and around the capital holding signs that said, "WILL WORK FOR FOOD"
Mindy
Let me first put out this disclaimer THIS IS MY OPINION! In my case the lawyers will not represent me because as thet put it "there is not going to be enough compensation to cover such a complicated case." This is one quote from the slimey..... My auto insurance policy has almost $500,000 left on it and according to the lawyer's rates they will get roughly 50% of that money. If you would like to hear more of these quotes e-mail me I willl send you more. There was one that left me crying and laughing at the same time but there was not room to put it here. I have spent eighteen months fighting to see a specialist but no lawyer that I have spoken with will help. I borrowed a Minneapolis/St. Paul yellow pages and it has got to be over six inches thick. I have called every lawyer in that book and I have the rejection letters to prove it. I called the Minnesota Attorney Generals Office more times than I will admit and they won't even help.
As far as doctors go I know there are TBPI people out there that are not diagnosed and it is because of greed and stupidity. To be blunt I wonder how many are even here anymore. Being diagnosed with RSD is the worst! They scream at you, call you names, and tell you that you are lying. If those "treatment" options don't work then they start in about you needing to see a shrink. I had horner's syndrome the doctors missed! My best friend last night for the first time in two years started talking and how she described me and the car was beyond words... I looked so bad there is only one photo of me in the first year! The idiot physicians didn't even notice my arm was paralyzed from the elbow down! By physicians I mean two family practice physicians, an orthopedic surgeon, and a neurologist all said "the lack of movement is a direct result of the RSD and will correct itself when the RSD is brought under control."(this is a quote from what's left of my medical chart and these doctors only charged a little over $60,000 for this misdiagnosis!)
RSD's name came about in the 1940s when it was created to cover four others. The original four were created as far back as the civil war to describe injuries and pain that made no medical sence at the time. With the advances in technology there should be no label RSD because it simply stands for unexplained pain in the sympathetic nervous system. Causalgia was one of the original four and was used to describe the pain civil war soldiers were having after minor shoulder wounds. Hmmmm doesn't that sound a lot like what we all go through. If you want more info on this please let me know. I have spent eighteen months researching both injuries to the point friends think I should write a book.
Fifteen months after the accident my current OT was the first medical person to exam and document the damage to my arm from the neck down. Everyone else looked at my wrist and fingers only! She is the one who found I have no feeling in my tricep region to name just one of the spots she found that day. She was horrified that no one bothered in fifteen months to examine me. The only exception to all this is the doctor who diagnosed the bpi he was the first and only one to admit this was over his head and saddly he will be the last physician to see my arm. Financially things are really bad around here. In 2001 I made one-sixth of what I made before the wreck so at this point in my life I have to move forward meaning my arm is going to have to wait. Its been two years and I very much doubt any specialist is going to be able to do anything except give me one more huge bill that I cannot afford.
I am sorry I have vented so much in the last two days but it makes me so angry to know that "doctors" are still slapping the label RSD on people for the sake of money. So my advice is if any physician says those three letters leave because they are not a doctor.
I did go to my state capital with my children with the intention of screaming about this injustice but I went to church and prayed when I saw people in and around the capital holding signs that said, "WILL WORK FOR FOOD"
Mindy