Prayers need for our premature granddaughter

Forum for parents of injured who are seeking information from other parents or people living with the injury. All welcome
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Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
Contact:
Contact Carolyn J

Re: Prayers need for our premature granddaughter

Post by Carolyn J »

Kath, Grace Mary and all of your family are in my prayers. I love her name; she WILL/IS full of Grace,I feel.
Carolyn J
Carolyn J
Adult LOBPI
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Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

Re: Prayers need for our premature granddaughter

Post by Kath »

Thank you all for your prayers. Grace is fighting a severe infection and they are not sure what it is. She is on a ventilator and cannot get her white count up to fight this infection and has had two transfusions and possible a platelet transfusion later today. Her white count is critically low at this point. The complete results of her spinal tap are not in yet.

The doctors said the reason she has survived and made any progress was prayer and to continue to ask for prayers for this very sick little one.

There was little hope for her survival last Sat & Sun…. Now she has turned a small corner and there is hope and some progress and that is so important for all of us.

Thanks for your support and prayers they are sustaining us during this time and helping us to maintain our hope and most of all your prayers are giving Grace Mary the strength to fight...

Kath
Kath robpi/adult

Kathleen Mallozzi
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Tammie
Posts: 224
Joined: Tue Feb 04, 2003 2:18 pm

Re: Prayers need for our premature granddaughter

Post by Tammie »

Special prayers are being sent her way. Keep us updated.
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LynND
Posts: 74
Joined: Sat May 24, 2003 6:59 pm

Re: Prayers need for our premature granddaughter

Post by LynND »

Kath
I sincerely hope things are still improving for your amazing Grace Mary
My thoughts and prayers are continuing
Lyn
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Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

Re: Prayers need for our premature granddaughter

Post by Kath »

Thank you for all the prayers and thoughts.

Our Amazing Grace is breathing on her own and everyone is shocked at the rapid recovery from the infection. She is now about 3 lb. 7 oz. and improving. Prayer can move mountains and give us great miracles. Since the doctors cannot explain this rapid change in such a tiny baby.

Please continue to keep her in your prayers she is still a very premature baby.
Kath
Kath robpi/adult

Kathleen Mallozzi
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jep98056
Posts: 322
Joined: Sun Apr 14, 2002 10:25 pm

Re: Prayers need for our premature granddaughter

Post by jep98056 »

Kath:

That's great news. Keep us posted.

John P.
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Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
Contact:
Contact Carolyn J

Re: Prayers need for our premature granddaughter

Post by Carolyn J »

Kath, Grace Marie and family
Prayers are very powerful and all of us on this forum board are continuing our prayers for you.

I personally have witnessedf miracles at Children's hospitals and in my own life and that of my son all due to prayer. We will continue to storm heaven!
Carolyn J
Carolyn J
Adult LOBPI
Top
Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

Re: Prayers need for our premature granddaughter

Post by Kath »

Grace is having a very difficult time again. She seems to have developed another infection and has a brain bleed. The doctors cannot find the cause of this infection and are baffled she has just had another spinal tap and they once again are looking for meningitis. Please continue to pray for her we will get the results of brain scan tomorrow. Thanks for all the prayers and support.
Kath
Kath robpi/adult

Kathleen Mallozzi
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