Hi everyone: I am so sorry to read of the traumas that parents experience with their children with BPI. My heart goes out to all of you and to all of your children.
There isn't much posted about adults with brachial plexus injuries. I posted a long response to someone on this message board about my injury caused, I am told, by the surgery. I had a severe fall on the ice and snow that destroyed my shoulder in January.
While the surgeon acknowledges the bp stretch, he refuses to treat the results. I ampretty mild mannered but the pain and the quiet urging from a great OT got me some pain meds. and keeps me looking for answers and relief. I will be going to see a doctor in Boston soon.
For me it is the loss of the use of my left hand, which is my predominent side. The use I had after surgery of some of my fingers and hand is getting worse by the day. My hand is now nonfunctional.
The symptoms in my hand re: pain are the same as if it is Reflex Sympathy Dystrophy (accordong to mt OT and reading the symptoms, I agree). My dr. won't acknowledge that. Well, I guess it would be hard to acknowledge much as he won't look at my hand. It is 2 times the size of my right hand, and, again this swelling has increased daily.
If there are adults that have dealt with this, or if anyone has any help, I will appreciate itvery much.
Thank you.
Shoulder Replacement Surgery - BPI
Re: Shoulder Replacement Surgery - BPI
Hi again! I should have "previewed" my message in my previous post. Please excuse my typos. I should know better as I am using one hand.
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Kath
- Posts: 3242
- Joined: Mon Nov 18, 2002 4:11 pm
- Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
- Location: New York
Re: Shoulder Replacement Surgery - BPI
Hi Diane T
Sorry about your injury... at this website we have a Message board just for Adults who are injured like you... TBPI try posting on that message board for information and support dealing with tbpi.
I am and adult/birth injured.
Kath
Sorry about your injury... at this website we have a Message board just for Adults who are injured like you... TBPI try posting on that message board for information and support dealing with tbpi.
I am and adult/birth injured.
Kath
Kath robpi/adult
Kathleen Mallozzi
Kathleen Mallozzi
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Kath
- Posts: 3242
- Joined: Mon Nov 18, 2002 4:11 pm
- Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
- Location: New York
Re: Shoulder Replacement Surgery - BPI
Diane T
We all have a bit of a problem with our spelling and typing.
I am birth injured Adult and always had a problem with spelling due to obpi.
welcome
KathM
We all have a bit of a problem with our spelling and typing.
I am birth injured Adult and always had a problem with spelling due to obpi.
welcome
KathM
Kath robpi/adult
Kathleen Mallozzi
Kathleen Mallozzi