Thanks for your kindness----"is it wrong"

[frankie]

there are so many things that I would like to chew on about erbs and other things but we can save the other things for later LOL.

I dont know about you but sometimes I feel that if I did not have Erbs I would be better at sports, and not be overweight the way I am. I was so active in high school but seems now that at the age of 28 my arm is getting worse and it is like a heavy weight that just hangs there .


Let me know how you feel

Frankie

[kamren]

I can understand. I have never been able to participate much in sports because of my limited ROM. I can remember in 5th grade wanting soooo much to play on the schools basketball team. I was told there was no way I could ever play, by both students and teachers.

I hated gym because no matter how hard I tried, I couldn't do pushups, or pullups, or cartwheels...etc And they docked my grade because of it.

School taught me to be ashamed of my arm, and I learned to hide it very well.

When I would complain of pain, most, even Drs, told me it was in my head. I learned to just live with the tightness that was normal for me. I learned to curb any activity that would cause a "flare-up" Or at least curtail my participation in it.

I have noticed lately that the ROM is worse than it used to be. It is getting to where I can not cover it up anymore, and is becoming noticable. Which was why I started looking online for exercises I could do to help. I stumbled here....then discovered that surgury was in my future.

I will never be 100%....but anything is better than where I am now.

[veggiebug]

Right now I'm going through a rough stage. I always viewed my birth weight as the main cause of how I got BP, but the other day my dad said the doctor almost passed out while I was being born. Now I wonder how capable he was. He is long gone by now, but it still makes me wonder.
And when I talk to my sister about how going to the doctor made me feel like a guinea pig growing up. She just acted like I was crazy.
I don't feel I fit in with the disabled because I'm not disabled enough, yet I don't fit in with people who aren't disabled because I feel I am.
But I do wish I had a bigger chest then maybe they would stare at my chest and not my arm when it doesn't move as much.

[kamren]

For me I really don't think it was my birth weight...I was 8lbs 6 ozs. But my Moms Dr was very anxious to get off on his ski vaction:( I was coming out shoulder first....He used the forceps grabbed my shoulder and pulled. He killed me....thank God for the nurse who wouldn't give up. I was one big bruise. My mother rejected me at first because I looked so bad.

Then they told her to leave my arm alone it would take care of itself. She didn't believe them. Her step father had had a stroke and had some partial parilization on his right side. She learned some of the PT exercises they had him doing and did them to me and my arm.

She has in my baby book a big entry at 4 months old.....I moved my hand for the first time by myself. If my Mom had listened to those stupid Drs, I wouldn't have even what I have now...which is pretty good use of my lower arm and hand.

Now Dr Shenaq is going to give me the use of my upper arm:)

But I always try to remember that my palsy has its blessings...it has made me who I am.....a kind, loving, compassionate person, who would do anything for her fellow man. So, if I could go back...I don't think I would change a thing. No matter the hardships...my entire life is a blessing, one I intend to enjoy to the fullest:)

[admin]

So now I am get tough on all here with this message!! I have Erbs and I was born with Erbs and a fractured Elbow 50years ago!! sure Erbs sucks!!! But you need to get past it!! HOW CAN I HELP YOU DO IT? I drive a semi and I am a Master Diver!! Sure there is reason I dont look in a mirrior to remided myself how deformed my arm is!! Or heres another adult tell to deal with erbs Sorry that not me just someone who has lived with Erbs a little longer than you!! Tell me what bugs you and tell me about what your trying to do? Maybe I can help and maybe I cant!! I Care and I have live this Life with Erbs! Tom

[admin]

I want to Impower You!!! Give you Determiation and turn your Life into the Positive!! I dont care what you cant do!! I could tell you about my disapointments in my 50 years!! It doesnt Help!If you want to try something Ill try to help, I will tell you one thing years ago said ( you cant learn to drive a Semi beacuse of your Erbs! Fact I have only simplie grasp in my Erbs arm!! 20 years later with out a ticket or acident I got to see that Clown Doctor who said I wilnt let you try to drive a Semi! I told that doctor after 20years of safe driving! You Fail me now I will own your house!!! Thats Fact And as a Master Diver with 300 dives only useing my good arm!Oh Im Real!! So how can I help and YES my spellings Bad!Tom

[admin]

My Mom was 5,6 I was 11lbs 12 oz, In my day they called Erbs a Deformite not a injury thats a fact.I dont want you to think that you will always have to deal with Erbs! There is opeation today that was no offed to me then! things will change for you and yes its about aforabilite now!but that will change just know I care I am real and I will help If I can.Tom

[rachelcasa]

Frankie,
I just love these boards. I always think the same thing. I was supposed to join a co-ed basketball league last week and chickened out. I have never played but once when I was in the 7th grade. The coach used to make me cry by putting me in a room and making me dribble with my arm the way it was. It was horrible. I should have just done it. I think the same way. Would I have been a college basketball star, my brothers and sisters were all good at sports. People to this day and I'm 32 still say to me, oh yeah, you weren't in sports. And then I explain why. Just wanteed to share that you aren't the only one who thinks that.
*S* Hang in there.