MY TRINITY

This board is for adults and teens to discuss issues relating to BPI since birth (OBPI).
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TRINITYSMOM
Posts: 1
Joined: Wed Nov 05, 2003 2:03 am

MY TRINITY

Post by TRINITYSMOM »

SOMEONE, ANYONE WHO CAN GIVE ME RECENT INFORMATION ON BRACHIAL PLEXY PALSEY OR NEW TREATMENTS PLEASE CONTACT ME AT MW242003@aol.com I LIVE IN AN AREA WHERE THE INJURY IS BASICLY UNHEARD OF AND I NEED CONVERSATION WITH SOMEONE WHO UNDERSTANDS.
jennyb
Posts: 1183
Joined: Fri Nov 02, 2001 5:24 pm
Injury Description, Date, extent, surgical intervention etc: January 1980 Yamaha RD200 vs 16 wheeler truck, result, 1 totally paralysed right arm. I was 21, now 54. I had no surgery, I don't regret this. Decided to totally ignore limitations (easily done aged 21) adapted very quickly to one handed life, got married, had 3 kids, worked- the effect of the injury on my life (once the pain stopped being constant) was minimal and now, aged 54, I very rarely even think of it, unless I bash it or it gets cold, then I wish I'd had it amputated :) Except for a steering knob on my car, I have no adaptations to help with life, mainly because I honestly don't think of myself as disabled and the only thing I can't do is peel potatoes, which is definitely a good thing.

Re: MY TRINITY

Post by jennyb »

Hi, I am an adult who got injured later in life, but the families who may be able to help you mainly post on the General Mwessage Board. If you try posting there I'm sure people will help you. All the best :0)
njbirk
Posts: 1806
Joined: Wed Oct 24, 2001 10:09 pm

Re: MY TRINITY

Post by njbirk »

Hi,

Glad you found us. You will find a lot of support here and as Jenny indicated in her post, it might be helpful to also post on the General message board.

You can also find a lot of information on the home page of this site.
http://ubpn.org
You will find links to our medical resource direcories which has contact information and questionnaire responses from many of the bpi specialists worldwide. On the awareness links you will find a lot of information about the injury.

Nancy Birk
UBPN President
cbe411
Posts: 1393
Joined: Sun Jun 01, 2003 8:27 pm
Injury Description, Date, extent, surgical intervention etc: MVA in 2001, nerve graph in 2002, Median Nerve Transfer in 2004 and an unsuccessful Gracillis Muscle Transfer in 2006. I am living life and loving it! Feel free to contact me :)
Location: Grosse Pointe Woods, MI
Contact:

Re: MY TRINITY

Post by cbe411 »

I added this post to the general board under the thread new mom!
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