Any TBPI had mod quad, other than nancy? i was just looking for more information. thans a bunch!!!
~Courtney xoxo
Surgery has any one had any success
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cbe411
- Posts: 1393
- Joined: Sun Jun 01, 2003 8:27 pm
- Injury Description, Date, extent, surgical intervention etc: MVA in 2001, nerve graph in 2002, Median Nerve Transfer in 2004 and an unsuccessful Gracillis Muscle Transfer in 2006. I am living life and loving it! Feel free to contact me :)
- Location: Grosse Pointe Woods, MI
- Contact:
Re: Surgery has any one had any success
Hi Beata how are you? Did you find the board? Mary
Re: Surgery has any one had any success
Reply
Any TBPI had mod quad, other than nancy? Whats a mod quad? Mary
Any TBPI had mod quad, other than nancy? Whats a mod quad? Mary
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jennyb
- Posts: 1183
- Joined: Fri Nov 02, 2001 5:24 pm
- Injury Description, Date, extent, surgical intervention etc: January 1980 Yamaha RD200 vs 16 wheeler truck, result, 1 totally paralysed right arm. I was 21, now 54. I had no surgery, I don't regret this. Decided to totally ignore limitations (easily done aged 21) adapted very quickly to one handed life, got married, had 3 kids, worked- the effect of the injury on my life (once the pain stopped being constant) was minimal and now, aged 54, I very rarely even think of it, unless I bash it or it gets cold, then I wish I'd had it amputated :) Except for a steering knob on my car, I have no adaptations to help with life, mainly because I honestly don't think of myself as disabled and the only thing I can't do is peel potatoes, which is definitely a good thing.
Re: Surgery has any one had any success
Mod quad is a secondary surgery which contains several elements. It was developed for obpi children injured at birth. Many other centres do some individual elements of the surgery rather than all at once, depending on the needs of the patient. As far as I know no tbpi has had the mod quad, that may be because the centre that developed it does not specialise in tbpi, we tend to have different issues from birth injured people, but of course I may be wrong- any tbpi who has had MQ please tell us about it! Many tbpi do have secondary surgery of various kinds, what people have depends largely on their own injury, we are all so different that I don't think anyone will ever develop a 'one size fits all' secondary surgery for tbpi.
Hope that helps!
Hope that helps!
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admin
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Re: Surgery has any one had any success
Thanks Jenny...........................Bob
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admin
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Re: Surgery has any one had any success
Hi. I have a friend who is going to need nerve grafting for his brachial plexus. his nerves were severed and several may be avulsed (doing a test today). he is going to have the nerve grafting surgery but wants to find the best doctor possible. Can anyone recommend surgeons? We are in New York City, but would travel if necessary. Also, he has spoken to Dr. jess Ting at Mt. Sinai...does anyone know him at all? Thanks for any help you can provide.
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cbe411
- Posts: 1393
- Joined: Sun Jun 01, 2003 8:27 pm
- Injury Description, Date, extent, surgical intervention etc: MVA in 2001, nerve graph in 2002, Median Nerve Transfer in 2004 and an unsuccessful Gracillis Muscle Transfer in 2006. I am living life and loving it! Feel free to contact me :)
- Location: Grosse Pointe Woods, MI
- Contact:
Re: Surgery has any one had any success
Marcy,
The only doctors that I can recommend are my own, but check out the resource directory on the website here and there are many different doctors there, all over the states. Dr. Wolff in Lousiville,KY did my nerve graph and Dr. Nath in Houston, TX did my nerve transfer. Hope this was of some help!
Feel free to email me if you need to, courtney@ubpn.org
Courtney
The only doctors that I can recommend are my own, but check out the resource directory on the website here and there are many different doctors there, all over the states. Dr. Wolff in Lousiville,KY did my nerve graph and Dr. Nath in Houston, TX did my nerve transfer. Hope this was of some help!
Feel free to email me if you need to, courtney@ubpn.org
Courtney
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jennyb
- Posts: 1183
- Joined: Fri Nov 02, 2001 5:24 pm
- Injury Description, Date, extent, surgical intervention etc: January 1980 Yamaha RD200 vs 16 wheeler truck, result, 1 totally paralysed right arm. I was 21, now 54. I had no surgery, I don't regret this. Decided to totally ignore limitations (easily done aged 21) adapted very quickly to one handed life, got married, had 3 kids, worked- the effect of the injury on my life (once the pain stopped being constant) was minimal and now, aged 54, I very rarely even think of it, unless I bash it or it gets cold, then I wish I'd had it amputated :) Except for a steering knob on my car, I have no adaptations to help with life, mainly because I honestly don't think of myself as disabled and the only thing I can't do is peel potatoes, which is definitely a good thing.
Re: Surgery has any one had any success
Hi Courtney, nice to see you posting. I didn't know you'd had a nerve graft already as well as the surgery you just had, when was that done?
Marcy, the directory Courtney refers to is on the home page, click on the 'medical resources' button. Unless you were injured at birth, it's important to try and find a specialist whose main interest is adult onset bpi. I know I keep on about this but it's really important-there is no way any of the parents would take their birth injured child to a trauma specialist, it follows that adults should see someone whose experience in trauma bpi is very wide-with at least 60 different kinds of lesions in tbpi, only someone very experienced is likely to have seen and operated on even some of them. The protocols, post surgical follow ups and therapy are all very different in adults, make sure whoever you choose has adults as their main interest, NOT a sideline.
Let us know how you get on :0)
Marcy, the directory Courtney refers to is on the home page, click on the 'medical resources' button. Unless you were injured at birth, it's important to try and find a specialist whose main interest is adult onset bpi. I know I keep on about this but it's really important-there is no way any of the parents would take their birth injured child to a trauma specialist, it follows that adults should see someone whose experience in trauma bpi is very wide-with at least 60 different kinds of lesions in tbpi, only someone very experienced is likely to have seen and operated on even some of them. The protocols, post surgical follow ups and therapy are all very different in adults, make sure whoever you choose has adults as their main interest, NOT a sideline.
Let us know how you get on :0)
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admin
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Re: Surgery has any one had any success
Hi every one my name is Todd and i'm going to have the gracilis muscle transfer done on the 29 of october.It has been 1 year and a half since my accident and not one surgury yet.I will let every one kown how it goes.every one take care.
HOPE EVERY THING GOES GOOD COURTNEY
TODD XOXO
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admin
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Re: Surgery has any one had any success
Someone wrote that if you go to "resources" that there is lists of doctors, I did that and it said its coming soon??? Where are the list of doctors you are talking about?